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    Undiagnosed child, with upcoming doctor's appointment- questions?

    Yeah im terrible, my gp hates me because I go in with a diagnoses before being seen! I agree that it points towards milk. Im wondering if it's a lactose intolerance which I will discuss with the GI as well. I did think it would be an idea to get the test done before the appointment, saves time...
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    Undiagnosed child, with upcoming doctor's appointment- questions?

    Yeah, the problem was my gp had no clue. She actually said that to me and asked what I knew about the test from the internet! I will just have to be patient and see what the GI says. I just have a habit of wanting to know the ins and outs of everything!
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    Undiagnosed child, with upcoming doctor's appointment- questions?

    Reference Ranges for Calprotectin (Inflammation) Inflammation Range (mcg/g [ug/g] of feces) Normal 0 - 50 Borderline (Retest 4-6 Weeks) 51 - 120 Abnormal > 120 Just had a thought, if the range on the results was 0-60 ug/g, then surely the results are for the inflammation range not age?
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    Undiagnosed child, with upcoming doctor's appointment- questions?

    Thanks so much for the replies, yes patience is well needed! I've learnt that much! I got a print out of the results and it's 157ug/g and their range is 0-60. We have taken him of dairy completely and he is like a different child, back to his normal self, no flair ups and only complaining of the...
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    Undiagnosed child, with upcoming doctor's appointment- questions?

    His FC results came back today. 157 micrograms per gram and doc said should be below 50. Doc admitted didn't know much about it and results will be passed to the GI ped we are seeing on the 10th July. I have no idea about the results range so would be grateful if anyone could offer any insight...
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    Undiagnosed child, with upcoming doctor's appointment- questions?

    Don't worry, no glass of milk will be given without speaking to the docs! I get everything you are saying and I really appreciate the fact that you take the time to respond, so thank you.
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    Undiagnosed child, with upcoming doctor's appointment- questions?

    Results are expressed in terms of a grade or as a serum concentration of specific IgE Grade 0 = <0.35KUA/L (negative) Grade 1 = 0.35-0.7KUA/L (weak positive) Grade 2 = 0.7-3.5KUA/L (positive) Grade 3 = 3.5-17.5KUA/L (positive) Grade 4 = 17.5-52.5KUA/L (strong positive) Grade 5 = 52.5-100KUA/L...
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    Undiagnosed child, with upcoming doctor's appointment- questions?

    We took him off milk and used a dairy free margarine in March, but he was still having dairy through cheese and yogurt. Previous to this he was getting red marks on his face where tomato ketchup and butter would come into contact with his skin, not raised just a red mark where the food item had...
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    Undiagnosed child, with upcoming doctor's appointment- questions?

    The gp we saw suggested re testing the milk allergy once we had seen the GI consultant. The stool sample for bacterial came back normal so just have to wait for the fc result. I knew it would come back normal.
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    Undiagnosed child, with upcoming doctor's appointment- questions?

    He tested pos but only slightly the notes read that if he is atopic, which he is, then it isn't an unsual result. He has always drank milk until around March when I cut it out because I suspected lactose intolerance. The rash he got from the butter is the same as he had at Easter when he had a...
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    Undiagnosed child, with upcoming doctor's appointment- questions?

    I really do appreciate you replying. It's beginning to dawn on me that this will be a long process, this is not the type of situation that I find easy and I have a tendency to want answers straight away, but patience is something that I'm going to have to learn. My son was diagnosed with a...
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    Undiagnosed child, with upcoming doctor's appointment- questions?

    It sounds like you had to go through an awful lot in order to get a diagnoses, I completely agree about the age thing as well, lots of things do just get written off. Saw the doc today and I almost cried in the surgery. The appointment was suggested by the surgery so we could discuss the blood...
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    Undiagnosed child, with upcoming doctor's appointment- questions?

    Thanks for the replies, I see what you mean about the difference between the two. I don't definitely think it is crohns at this point, it just seems that what he is experiencing seems to fit to a certain extent. At the end of the day I'm in the dark and just trying to find some sort of answer...
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    Undiagnosed child, with upcoming doctor's appointment- questions?

    So, I've just given him a sandwich with butter and noticed a red mark on his face where the butter had come into contact with his skin. I've just put butter on his cheek and the inside of his arms (this was what I was told to do by my gp with tomato ketchup to see if it was causing a skin...
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    Undiagnosed child, with upcoming doctor's appointment- questions?

    Thank you for your reply. It's so frustrating, I know that even if the result came back as bacterial he would still continue to get the same tummy pain with flair ups, so it doesn't matter to me if the result is bacterial. The problem is at my surgery, we see diff docs, so they all have their...
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    Undiagnosed child, with upcoming doctor's appointment- questions?

    The rest of the results are neg for celiac and slight allergy for cows milk, although the note on the results says it's not unusual for an atopic child to show this so it's not definitive. Stool samples sent away today, one for bacteria and one for the calprotectin. It's like pulling teeth with...
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    Undiagnosed child, with upcoming doctor's appointment- questions?

    Thanks for your reply, they didn't test for infections but in march when he had a flair up they did test a still sample for infections and that came back clear
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    Undiagnosed child, with upcoming doctor's appointment- questions?

    Ok, so bloods taken - not all results are back, but shows esr and crp levels raised and neutrophils raised. Doc said these were markers for IBS but I spoke to a diff doc from my usual and she doesn't know the whole context so was pushing for it to just be a bacterial infection. I said I wanted...
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    Undiagnosed child, with upcoming doctor's appointment- questions?

    Thank you all so much for the replies. I will post tomorrow once I've been to the doctors and I will push for that test as well.
  20. P

    Undiagnosed child, with upcoming doctor's appointment- questions?

    Thank you for the replies. My own go did suggest coeliac as well as lactose, but the consultant we saw on wed just diagnosed him with the secondary lactose intolerance without testing. I have kept a food diary but cant seem to see a pattern. It's like he has flair ups of it every couple of weeks...
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