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Well Claire has gained 3 lbs. That makes me happy. Seeing a little color in her face for the first time in years makes me happy too! Her abdomen though - even before feed - is looking distended to me. If it continues through Monday, I am going to call the GI. BMs are fine, sleeping is...

OK.....here we go...... 1. Why was your child prescribed Stelara? Claire's existing treatment regimen is failing at keeping her disease in remission. Really for the last four years, we've just been riding a roller coaster. I requested that we figure out a good biologic - we being GI...

OK.....here we go...... 1. Why was your child prescribed Stelara? Claire's existing treatment regimen is failing at keeping her disease in remission. Really for the last four years, we've just been riding a roller coaster. I requested that we figure out a good biologic - we being GI...

Mlp......:( :( :(

:)

Catherine - Iron level from 153 to 42, TIBC from 207 to 186, Ferritin 113 to 168. So to your question, yes the first two dropped and the other rising. The sat (I think I mentioned before) dropping to 23% - was 67%. Thoughts??? I feel guilty about the Ferritin number when everyone is...

Catherine - didn't show a range for iron sat. However there was a value on that one from about a year ago. It was 67% now 23%. I guess that's why I was leaning to the malabsorption/malnutrition on the TIBC. Her Albumin was low too.

mlp - I just think it keeps pointing to her malnutrition due to poor absorption??? Albumin was quite low as well. I swear he's never checked either of these before though! I couldn't figure out why he was checking it now. I guess I don't get to be all knowing on this one (please note my...

I'm sprinkling frowny faces all over the forum tonight. :( :( :( I hope she feels better.

Oh mlp.....it's always something, isn't it?????? Sigh...... I'm sure you are tracking tracking tracking watching waiting watching waiting. :ybatty: Idk about the toes???? Hugs, J.

Upsetmom - I just wanted to say :( :( :(. I hope you see results soon from the iron infusions. Hugs, J.

Alright oracle friends on the forum. :-) Claire's last labs showed mild anemia - we've been waaaaaay worse. First set of some of these I've seen. GI ordered them when choosing her EN formula. What can you tell me about the TIBC? Do I care? (of course I care but you know what I mean!)...

Fecal cal is a great idea to see if there is any bowel inflammation. Plus it's just a stool sample so that's easy! www.ccfa.org That's the crohn's and colitis foundation webpage. Might help you as you are researching. Hugs, J.

Maintaining my sense of humor. Claire thought this was funny!

Yaaaaa-hhhhoooooooooooooo!!!!!! J.

Since I've been such a grump on here lately, I feel compelled to share some joy. The tube insertion, while she won't do it herself, is going perfectly fine each night. She is tolerating everything fine. I do keep checking her weight because her belly looks a little distended but she isn't...

I'm so excited for you that the FC is good!!!! I hope the scope results match. :ghug: J.

Okay funny you say that about the skin that looks "rubbed"! We have that and I keep MEANING to ask the doc about it and then there are more pressing questions. I'll try to get a pic to show you and see if it looks like Nick's. Also, could be warts. We had wart-palooza for awhile on 6MP...

Dusty - Do you think it's best for us to cut and paste the questions into our posts? Also, do you want newbies like us or folks with a certain time length on the drug? J.

Dusty - Do you think it's best for us to cut and paste the questions into our posts? Also, do you want newbies like us or folks with a certain time length on the drug? J.