Search results

Crohn's Disease Forum

Help Support Crohn's Disease Forum:

  1. J

    VEO CROHN'S DISEASE

    Hi All I came across an article in which MAP bacterium supposedly causes Crohn's disease in children. If possible, please review and let me know your thoughts.
  2. J

    VEO CROHN'S DISEASE

    Yesterday my son was discharged from the hospital. I also had a detailed chat with the immunologist. He stated that the exome sequencing is in progress. But he was also clear that there are only 30% chance of finding something. Fingers crossed.
  3. J

    VEO CROHN'S DISEASE

    Thanks Maya142 for your message. He is still at the hospital. The doctors wanted to observe him for one more day. Hopefully they will discharge him this afternoon. With the frequent hospitalisations, my son doesn't let any nurse or doctor come near him. But no choice under the circumstances.
  4. J

    VEO CROHN'S DISEASE

    Thanks Maya142, MLP and Pangolin for your messages. Last night, my son tested positive for enterovirus. At least we have a reason for his high fever. Tomorrow the immunologist is back so we will find out tomorrow how long it will take to get some answers if immune disregulation is there. The gut...
  5. J

    VEO CROHN'S DISEASE

    Thanks MLP, Pilgrim and Pangolin for your messages. MLP-I had a chat with the paediatric gastroenterologist today and he advised that the panel for immune disregulation is probably ordered. The paediatric immunologist will be back on Tuesday and will check with him what has been ordered. I will...
  6. J

    VEO CROHN'S DISEASE

    Thanks Maya142 and my little penguin for your responses. This afternoon the fever reached 38 and we rushed him to the emergency. At emergency, the fever reached 40.2. I am sitting in the emergency again as I type this message. @MLP - Is the immune disregulation program part of exome genetic...
  7. J

    VEO CROHN'S DISEASE

    Hi Maya142 -thanks for your reply. Yesterday the doctor changed my son's medication to methotrexate. When I had a chat with the doctor yesterday, he advised that it is best to go with methotrexate instead of going to biologics. I think the protocol for the doctors based in this hospital is to...
  8. J

    VEO CROHN'S DISEASE

    Thanks all for your messages. The Children’s Hospital in Sydney has got an IBD clinic. There is a team of doctors who have been involved apart from his regular paediatric gastroenterologist which includes a paediatric immunologist who has ordered exhome sequencing which will take time. We have...
  9. J

    VEO CROHN'S DISEASE

    Hi Pangolin Thanks for your reply. I am based in Sydney Australia. The diagnosis was based on a biopsy done post colonoscopy after sustained period of bleeding in my son's poop. The paediatric gastroenterologist didn't want to make a diagnosis without a colonoscopy. Only when the results came...
  10. J

    VEO CROHN'S DISEASE

    My son was around 18 months old when he was diagnosed with Crohn's disease. Since then we have been to the emergency and a couple of weeks multiple times. We started him on sulfasalazine and a couple of weeks into it, he developed high fever. We rushed him to emergency and 3 days into it, he...
Back
Top