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I don't know if I'm thinking about this the right way, but from what you've said about O in the past she had always refused EEN. From the outside looking in, if she accepts the G tube then at least EEN will get a proper chance with no equivocation. I'm not sure you should help her look for other...

My Crohn's son just got his second dose of Pfizer today. Mild sore arm after first dose. Our GI said to get them vaccinated as soon as it was possible.

I'm so sorry to hear this. It sounds truly scary. Praying she can be stabilized.

I'm glad she wrote to GI - not an easy step knowing tough days ahead. Hope the NG tube does wonders and allows Humira to work. Do you get to sleep in that ultra comfy fold out chair in her hospital room tonight?

@deepbluewave777 My daughter seemed to be ok with rice crispies but I do agree with MLP above that you do want to be careful not to remove wheat until after diagnosis. We would use bananas, yogurt, and peaches or a small amount of strawberries for smoothies. Maybe a little honey...

The gold standard for diagnosis is upper and lower endoscopy with biopsies taken. In your situation, I would push for that. It also will give them a roadmap to current disease location and severity. It makes a difference when deciding on meds. As for food, I would normally reccomend meal...

Hope you are all ok there. Just wondering if they had any advice for you.

It is possible, so you won't know for sure until the diagnosis comes in. That said, mom instincts are pretty good. I remember the long road to diagnosis with my then 3 year old. I had all the possibilities figured out but refused to even consider it could be Crohn's. It just sounded too awful...

I think you need to call them. It is really unusual for kids to get shingles and it can become systemic and dangerous in an immune suppressed person. He may need antivirals. This happened to my daughter and fortunately we caught it in time to treat it. We did need to stop biologics for a few...

I hope she goes for the g-tube. It sounds like a reliable way for her to do EEN and....not back out too soon (like as soon as she feels better). Stressful decisions for a bright young woman. I hope that whatever she decides is the combo that works. If she is at home - also good.

I don't have advice but just want to encourage you to keep us posted. My daughter has her first pediatric dermatologist appointment in September 2021 so I will also post what we learn here -and we can help others who come along.

Nuts and fish are not required on CDED but they are allowed in small quantities after week 6, I believe. 8 walnuts or almonds per day, unprocessed. 1 serving of fish can replace the chicken one time per week. That's just for anyone who is thinking about trying it. Your ds is so allergic it...

MLP did you have good results? I am cooking a lot - like 3-5 hours most days. But now I have a feel for what they like and it's getting easier. The instant pot is a life saver for making marinara, pulled chicken breast, bbq sauce, applesauce. Sometimes the challenge is just getting the mandatory...

That 20% number is from clinical trials(2019 if I remember correctly) and the research looks very solid. There were even a handful of patients who refused the PEN part of the diet, did only the food part, and went into remission. We also did SCD for about a year and a half. I have the books and...

I was able to access the training info for professionals and I am sold! Well...enough to be giving it 100% effort. If it doesn't work ( they say about 20% don't respond to diet) at least I can feel sure we tried. The research is solid. I am cooking all day. But....we are still locked down up...

Ugh and grrr on the Immodium.

We started with stage 1 - 50% PEN @crohnsinct

It seems to correlate to the results in the CDED research.We are trying that diet now on advice from GI and working with a registered dietitian (alongside meds). Although CDED focusses on chicken breast and eggs as protein staples rather than fish. I can't wait to repeat fcals and see how it...

A well meaning friend sent me an "amazing" testimonial from a young woman with, apparently, Crohn's AND Ulcerative Colitis. Who had perfect scopes after two months taking Juice Plus capsules. If only I had known how easy it was....(heavy sarcasm) My husband suggested that I reply that we were...

For H the doc didn't scope. He did levels and fcal. Quite frankly levels were very high but we chose the dose increase anyway to make sure we used it for all it was worth. It probably wouldn't hurt to increase O's Humira to weekly dosing however if you have to wait 3 months to see if there's...