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Just in hospital getting Stelara infusion for C. His Humira levels were 34, so we moved to bi-weekly from weekly with no help to the psoriasis- and we pushed to switch meds. I'm hoping we see continued Crohn's remission and a big change with the psoriasis.

Praying for a smooth surgery, and recovery. Really feeling emotional about this having known O's story for so many years now. I hope she gets absolute relief in the years to come. I'm thinking of you too, and while it is not your first thought - am hoping you get a good break from the stress in...

My son with Crohn's has an ugly case of angular chelitis. We are trying to treat it with an anti-fungal cream. It is in one corner of his mouth. The pharmacist said it may take weeks to treat successfully.

We used levels testing and calpro testing at 3 month intervals.

H did bridge therapy of 4-6 weeks EEN then 50% calories from shakes on CDED. It took over a year plus 4 week dosing for her to be stable. She's done well - we are 2 years in. She has primarily small bowel disease.

Yeah, as far as I know he's still in remission on Humira and I am still waiting for his levels to come back. They did levels but not fcal. That is really helpful to know about M's methotrexate experience. Did M take it by injection both times? C was 9 when we tried it and is 14 now.

I have seen research that shows the possibility of amitriptyline having an anti-inflammatory effect on Crohn's disease but I've not seen it used as front line treatment.

We do have a similar camp here - Camp Got2Go. I would be scared to send him on a flight so far away when his mental health is precarious. Maybe in the future. Tell your daughter I said thank you - hearing that makes more of a difference when it comes from someone who has had experience.

He sees a therapist weekly now and a psychiatrist every month or so plus SSRI'S. It's comforting, in a way, to know other kids have been there.

@Maya142 You are very insightful. He seemed fine during the appointment, slept on the way back, ate, worked out, seemed fine when I said goodnight. Then he had a serious depressive episode in the middle of the night which he said he didn't understand where it came from. I think he is very...

We ended up seeing a relatively new Dermatologist who was not a pediatric derm. She said it is definitely psoriasis and also a fungal issue along with that. She didn't think anyone could get psoriasis as a drug side effect. So did not think Humira was an issue. She suggested we use Nizoral 2-3...

He has plaques. Hair loss where the plaques developed.

I wonder what comes first - the psoriasis, or the depression, or if it works together by inflammatory process. In our situation - the suicidal ideation came first and the scalp psoriasis followed within two weeks although I'm not sure how long it had been brewing because the bit behind his ear...

I started reading articles about psoriasis and depression- wow. I had no idea. Now I will definitely make it known at our consult and I thank you so much for bringing it to my attention.

Thank you so much for all the information you have given me. It's good to have a general idea of many options so I am not thinking in only one direction when we have our consult.

I did a little digging and learned that Crohn's patients have a significant increase over the general population in diagnosed mental illness such as anxiety and depression. We have two kids with Crohn's disease and one of them is very accepting and rolls with the bad days using her own set of...

No, H didn't use the Tacro on her scalp. Well, sort of. She used it behind her ear. She also had a patch on her leg she treated. I used Tgel on her scalp to keep things somewhat under control but when she was switched from Humira to Stelara the psoriasis cleared up completely, in every spot...

I'm shocked at how quickly the lesions are spreading plus the hair loss. Fortunately he was a little shaggy looking when it started and can cover it up still. I bought the Tgel and he's starting that twice weekly. Plus I had some Tacrolimus ointment leftover from H and am using it on him until...

What did she use to replace the chicken and egg mandatory items?

@Maya142 psoriasis affected one of your girls if memory serves me and maybe @crohnsinct one of yours also?