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Should add CDED Crohn's Disease Exclusion Diet to the list as it has some evidence based results.

Look into the possibility of Azathioprine induced pancreatitis. If this is the problem you will just feel worse each dose, and probably worth bloodwork to rule out.

I will also be watching this thread in case anyone has more insights on Vegan CDED.

C is 14 now, first year of high school. He has been taking 40mg Humira weekly for some time. His Crohn's is stable and under control. He developed what looks like scalp psoriasis. It is developing pretty fast and he has lost a large patch of hair. I talked to GI last week and had requested a...

I posted this elsewhere but in our experience Stelara took 12-16 months to be therapeutic at 4 week dosing. In the first 6 months her fcal wasn't improving.

In our experience Stelara took 12-16 months to be therapeutic and that was at 4 week dosing.

When I research this I have the same question.

Read the study. It made me wonder if Crohn's patients taking SSRI'S for depression or anxiety see any increase in remission rates or lengths. Just thinking about the serotonin angle.

It's a diagnosis that is so hard to accept. At 14, maybe your son will be interested in learning along with you and preparing from an early age to advocate for himself in a medical setting. My son who has Crohn's is also 14 (although his diagnosis was 5 years ago now). I wish he was more...

Want to add that the meal replacement shakes (Boost, Ensure etc) have been a staple here with both of my kids with Crohn's and I think have been a huge help keeping growth happening. I hated the idea of those too at first but now I keep the fridge stocked. At least 2 a day for each of them...

The most recent time was when we used EEN then CDED (diet) as a bridge therapy when Humira was dropped and we were waiting for authorization and set up of Stelara - and knowing that it takes Stelara a long time to work. We had labs at the 3 month mark, which showed great improvement but I didn't...

My daughter, 12, is taking Stelara now for about 18 months after about 6 years of Humira. Her growth is great and we've had less side effects using Stelara than other drugs, so far. Personally, our experience with steroids, methotrexate, Azathioprine...were terrible. Humira was good for a long...

We did do maintenance but it was harder, ironically, to keep the cheats to just the 2 days. For us it just worked to use the first 2 stages. More of a self control/teens issue.when we went back to it, we had to do stage 2.

My daughter was diagnosed VEO at age 3, and went through different options: EEN, Azathioprine, Sulfasalazine, dietary before starting Humira at age 4. Humira was successful for many years. If I remember correctly she had to work up the med ladder in order to access biologics. In Canada 12 weeks...

My daughter went on a strict CDED diet for 12 weeks when she started Stelara. It really kick started her remission. We liberalized the diet at 12 weeks and unfortunately the Stelara wasn't ready to take over. Her fecal calpro shot up again. So we returned to the principals of the diet and at...

Great idea. Additionally I sometimes forget who was scoped when because we have 2 kids with Crohn's among a busy big family. I definitely need to do this.

We could not start our child on a biologic without her being up to date on her childhood immunizations. She was 4 at the time (no covid then). I didn't know they could make exceptions. We have had flu shots some years, and some years we haven't. She was hospitalized once after she caught a GI...

Had they tested her at all for celiac previously? What is the history there? And HOORAY for a diagnosis with a solution.

Remember that some are writing advice from an American system. We are in the Canadian system and you are in the UK. My kids are not in remission and we have visits or telehealth every 6 months with various labs done quarterly. FCAL can fluctuate as well even a bit day to day or depending on...