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The above was added yesterday to the Ontario Government website. Hope that helps.

Those undergoing active treatment with the following categories of immunosuppressive therapies: anti-B cell therapies (monoclonal antibodies targeting CD19, CD20 and CD22), high-dose systemic corticosteroids, alkylating agents, antimetabolites, or tumor-necrosis factor (TNF) inhibitors and other...

This was Ontario and listed anti-tnf meds as eligible.

3rd dose for immune compromised is now being offered in Canada. If any Canadians are wondering. H is still too young. C is eligible (weekly dose Humira) but I want to discuss with GI first.

I think it's definitely harder for people who get diagnosed as young adults or adults.

The kids who wrestle it early don't plan to climb Kilimanjaro, at least mine doesn't. But she does plan a life with beauty built in. She wants 2 cats and loves to sketch birds and is working on learning piano and a second language. Could be worse! She's in month 4 of Stelara. Hope it starts...

I remember how hard it was making the kindergarten decision with H....and this was before covid! Our daughter is now 10 and still too young to be vaccinated. She is in her first 6 months of a med change (Stelara) and not in remission. Our school is fully masked and they did a good job last year...

Are you kidding?! I think your description sounds very serious and definitely an urgent referral. A lot of us on here are dealing with kids of various ages with unusual or severe disease so in a sense we aren't great examples. A Calprotectin result of nearly 500 is definitely not normal. You...

We are in a small town in Canada. Sometimes things get lost in the system in the summer. Call your GP's office and be the squeaky wheel.Ask for the name and contact of the GI. Ask for time frames.

I am another high levels parent. One of my kids with Crohn's has often shown levels between 3000 and 6000. It is definitely an indicator of high disease activity for her, and sometimes the only indicator. It has meant medication adjustments. However, time is always spent on each medication...

H is similar. High calpro, fatigue and dropping iron are the symptoms. It's always interesting to read how that manifests under scopes for other kids! Sorry that there is a fistula starting but glad doc is right on it. It must be so reassuring to see her advocating for herself. In another...

That's funny because I asked about every 6 weeks and was told no. I am ready to see her move towards remission - happy to try 4 week interval. Do you remember how long it took for you to see an improvement after the dose interval change? No MTX, we dropped it to try Stelara as monotherapy.

That is really good to know MLP, because I was also told today they are moving her dosing to every 4 weeks on Stelara. Her levels were very low at 1.5 with still 10 days before dosing. I am hoping the med adjustment is really going to help.

@Maya142 Thank you! We have a telehealth with GI next week and I will ask him for a retest date and a plan B for infusions. We upped her fluid intake with the iron which seems to help with tolerance so I am willing to give it a month. I want to know before school starts.

It's not perfect but better than nothing!

@pdx Thank you! I read that if she takes this supplement with a LOT of water it will help side effects. We're trying that first to see how it goes. It won't hurt her to have extra water either.

My daughter has low normal hemoglobin but very low ferritin- test result was 5. She has been exhausted for months. She is recently taking a liquid iron supplement called Palafer but it makes her feel sick. I would like to push for an infusion but don't know how...what kind....so I am following...

This sounds like a solid plan all around. I'm encouraged for O, and for you. I hope you are through the hardest parts.

You mean the doctor who never says no?

The gtube EEN gives weekly Humira a fighting chance. They go together. Best team for delaying or possibly avoiding surgery at this point.