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I really hope the additional imaging helps with the decision-making. Hope everything goes well.

Thanks, Maya and CIC. Our GI says to wait 6-8 weeks, so we'll go with that. E is feeling much better; the infection lasted about a week, and her symptoms didn't seem to be out of the ordinary.

Quick question for the committee. E has been on Stelara for about 6 months, and overall doing well but still experiencing fatigue and occasional abdominal pain. She has enough symptoms that we are wondering if she'll need to switch to more frequent injections. Calprotectin post resection just...

OK, that's good that you've requested imaging. I'm really surprised that her doctor hasn't done any since diagnosis. Our GI has always ordered an MRE, and often a scope, when my daughter has been in a stubborn flare. She has also gotten one when she changes meds, so that the doctor has a...

So sorry that your daughter is having such a hard time. When did she last have scopes and/or imaging? I'm wondering where her inflammation is.

Maya's response reminded me that I meant to mention Camp Oasis. Have your kids had a chance to meet other kids with Crohn's? E went to Camp Oasis for two years and I think it helped her to meet other kids and counselors who could understand what she's gone through.

Meds and therapy have been very helpful for both of my kids, one with and one without Crohn's. E and I also participated together in a year-long DBT skills group for teens and parents that was very helpful for both of us. I think groups can be a bit "luck of the draw" though; we happened to be...

E's first treatment was Remicade + methotrexate, and she never had psoriasis while on the combo. After a year her doctor wanted her to trial dropping mtx, and she developed scalp psoriasis a few months later. We tried different shampoos and steroid ointments, but the only thing that helped was...

Sorry--don't have suggestions just sympathy. My daughter also has painful cramps and heavy bleeding during her periods, which contributes to her iron deficiency. She also had a large (10cm) ovarian cyst that was removed last summer during her resection, and now has another one growing in the...

Big hugs to you. My daughter is 20 and has a Crohn's history similar to you. She had many years of remission on Remicade and methotrexate, but lately has had a few years of uncontrolled disease, and that, combined with Covid shutdowns, has been really hard for her, physically and mentally...

Hi there. I'm in the Pacific Northwest so no experience with LA doctors--sorry. I hope that the remicade levels results come back soon and are helpful in figuring out what's going on. I will say that it's really hard to find a good doctor right now, at least where we are. All the adult GI...

I just looked it up--it's "at least 4 months" after the 4th dose.

Are you thinking about another booster soon? My daughter is also about 4 months since her last booster. My younger non-IBD daughter had Covid last month and none of the rest of us got it. Don't know if that was because the rest of us were less than 4 months from our booster or if younger...

My daughter used to absolutely hate infusions, but we figured out ways to make it very tolerable for her, and now she doesn't mind them at all. Here's a few things she does, even now that she's 19: --Lots of hydration starting 24 hours before to plump up her veins --Tylenol an hour before...

We have found that ferrous gluconate tablets don’t cause stomach issues or constipation.

Glad to hear this!

Thanks for the update! So glad to hear how well everything is going.

So glad it went well!!

That sound good. Fingers crossed that the surgery goes really well with a quick recovery.

Not great, unfortunately. On the positive side, she is 4 weeks into EEN via ng-tube (her suggestion!) and symptoms are much improved. I'll do a real update on her thread once things are going better and I have a little more time.