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Hugs from me too. Hope everything goes as well as it can this week and that she has a clear path forward.

I don't think my daughter's GI put any restrictions on the food my daughter could eat, but we decided to stick with foods from the IBD-AID diet at first. (This is the IBD anti-inflammatory diet--you can google it for more info.) This diet has phases, so we started with Phase I foods and then...

Gosh, no! She did 90% formula/10% solid food for 6 weeks, then 50% formula/50% solid food for another 2 weeks. Then she did 6 weeks of supplemental EN where she would eat normally all day, and then put in the NG-tube just for the night and get some additional calories from formula that way...

How is M doing now? Hope she is feeling much better!

Oh no--so sorry to hear this. I don't have any experience to share, but just wanted to say that I hope that she has a quick recovery, and that she can go back on her normal meds soon. Please keep us updated.

I totally understand where you are coming from. We are an "organic garden, farmers market, vegetarian for years" family, and we tried an all natural alternative diet at first (SCD in our case). I could not understand how formula--with all its artificial and processed ingredients--could work so...

Those heights and weights match up almost exactly with my daughter's when she was diagnosed. And yes, 70 lbs and 5'3" is really scary to see. When my daughter's GI saw her at 70 lbs, she told us that we either needed to start EEN with an NG-tube or TPN. I went home and sobbed. I just could not...

Just wanted to add that calpro of <16 is excellent news!

Yeah, we'll have to see if another biologic can tamp down the inflammation. I'll talk to her about EEN. I don't know if that's something that her adult GI is used to using, and I also don't know if E would be able to handle EEN on her own at school. She definitely would need an ng-tube, so that...

I just read through this thread again and realized that many of you talked about the different treatment options already--thank you. I'm going to do some more reading and we'll wait to see what her doctor says.

All the test results are back. Her repeat calprotectin was 1100, which is still very high but more in line with past results than the 7900. Infliximab level was 19 with no antibodies, so a med increase is not likely to help. MRE showed a bit more stricturing at the ileum than in the past and...

My daughter is not great with dental procedures so she opted to go to the day surgery center for the extractions, where she was more fully sedated. She was on oxycodone afterwards for maybe 3 days? Then she moved to Tylenol.

My daughter had her wisdom teeth removed last June and it went well. She didn't have to change anything about her Remicade infusions, but we did hold her methotrexate for a week or two. She received IV antibiotics during the surgery but didn't need to take them afterwards. She took pain meds for...

I don't have experience with arthritis but just wanted to say that I'm sorry that she's having to deal with this. Hope that you can figure out what's going on and a good way to treat it.

OK--I want to do some prep before my daughter's GI appointment next week. It does look like Stelara might be a better next option, rather than Entyvio. I'm thinking that her doctor is suggesting Entyvio only because E told her that she prefers infusions to shots. So a few questions for those...

For my daughter the challenge was being able to swallow her budesonide pills. And yes, she now has a prodigious ability to take pills. She takes 6 or 7 pills every morning and loves to watch my eyes pop when she takes all of them at once.

It's great to hear that your daughter is doing so well a year after being so sick! We have tried many iron supplements at my house. The usual 65-mg supplement is iron sulfate, which is an easy to swallow small pill but caused stomach pain and constipation for my daughter (and many people). I...

Already heard back from her doctor: yes on both the repeat calprotectin and the MRE. Hopefully we can get both done while she's home over winter break in a few weeks.

Thanks, everyone. And I didn't mean to cause a surgery panic! Resection has never been mentioned once by E's doctors; that was just me thinking out loud. And my husband is pretty against the idea of surgery too. We certainly wouldn't (and couldn't) do anything without her doctor's agreement, and...

E has had high calprotectin numbers--above 500--for the past 18 months. During that time she's had mild Crohn's symptoms--fatigue, low iron levels, occasional nausea and pain, and a little bleeding. Her weight has oscillated a bit over that time but it's good right now--around 140 pounds--and...