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We need a way of giving a hug and a like at the same time! Glad things are improving inside and oh no! to the black outs. Is she dehydrated? Does she have a large ileostomy output?Heart rate? Bp? BUN/Cr? Or is it anemia?

🚿 🌛 before 🛏?

it would be good to know what her normally hydrated hemoglobin is. Does she need a transfusion? Did she have a medical consult when she was dizzy? If it happens again ( hopefully not), pls ask for that . Vertigo is one type of dizziness. The differential is different depending on the type of...

Sounds to me like the medical team discharged her prematurely. You are not at fault AT ALL. What is her nutrition plan to help her gain weight back do she can recover fully? Malnutrition inhibits wound healing. She will have more NPO times etc. Seems like she will need some supplements...

How goes it?

Pain is real...if tylenol is not enough, let them know. They don't want people to be on opiate pain meds for too long but they also don't want anyone to suffer. How is she doing with nutrition?

Boring would be great, medically speaking!

So very happy to hear she’s feeling better this morning!

Wow. That's a lot to deal with. I can understand feeling defeated. Would she be interested in talking with a therapist? If so, does the hospital have someone who they could consult? I hope her surgeon will ensure adequate nutrition. Can you get enteral feeds? If she can't attend the bridal...

10 pounds down if you subtract 4 pounds colon weight. Still a lot.

Glad she’s not on the plane. Does she need IV fluids?

Glad they could see her and evaluate/treat without delay.

Like you, I'm concerned... It makes it really hard when you have to decide on a flight. If there's any way you can stay a few days longer, I would really do that. Dehydration, soaking drainage, dripping blood.... I think you guys have gotten used to so much that this doesn't sound that bad to...

Ugh. Just seeing your post now. Is she feeling any better today? How is her hydration status? Sending hugs and hopes that she will be feeling better soon.

CRP goes up a lot normally after major abdominal surgery. Red line with major infection, blue line with no or minor infection; pod=postoperative day (from here) https://ars.els-cdn.com/content/image/1-s2.0-S0039606021003974-gr2.jpg

I think that a big drop in H and H due to bleeding would likely be associated with increased heart rate and orthostatic hypotension and feeling weak. What does attending surgeon say? in any case, she must stay till she and her hemoglobin are stable.

Why would blood thinners cause a drop? How low is hemoglobin and what are they doing to investigate?

Although Rinvoq cleared her system, its effects may linger. I do not know.

I’m really sorry to hear that her recovery has been rocky and hope it's smooth sailing from here on in! Surgery, specifically colectomy (at least in UC), and IBD (particularly active disease) are all risk factors for clots. Did the surgeon discuss prophylactic anticoagulation? I'm not sure...

How is she doing?