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  1. X

    Heard from Doc today

    Sorry to hear about the high Calpro and very glad to hear about her apt with the new GI. That there's no way to make up 15 hours of clinic time really frustrates me. There should be a way! They really do not seem to be very accommodating. Is there any possibility of doing this internship at...
  2. X

    Little Pilgrim has Opinions

    Glad to hear her back pain is better and Calprotectin has decreased!
  3. X

    Little Pilgrim has Opinions

    Sorry, I’m not familiar with Schmorl nodes. I’m glad her GP was able to see her. How has she been feeling?
  4. X

    Heard from Doc today

    https://www.cdc.gov/chickenpox/hcp/index.html has info on immunocompromised and varicella. My mistake: It seems VARIZIG is only for post exposure prophylaxis not for someone who already has it.
  5. X

    Heard from Doc today

    "Varicella zoster immune globulin (human) (VARIZIG) is recommended for post-exposure prophylaxis to prevent or attenuate varicella infection in high-risk individuals." https://link.springer.com/article/10.1186/s12879-020-05656-6
  6. X

    Heard from Doc today

    So how many days ago was the positive varicella test? Was it a nasal swab? How high was her fever yesterday? How is she otherwise feeling? If her doctor is not available, is there a covering doctor who answers calls for her doctor at night? She needs a physician to figure out whether she...
  7. X

    Heard from Doc today

    I don't know what risk Tofa poses in terms of getting sick with Covid-19 but it apparently can be helpful in hospitalized people sick with Covid-19 pneumonia according to this New England Journal of Medicine study which says: "In this randomized, double-blind, placebo-controlled trial involving...
  8. X

    Heard from Doc today

    I don't like the idea of taking antibiotics for an unknown source of infection. [Yes this is sometimes done after drawing blood cultures and checking for other sources of infection (sputum, urine when indicated) in people who are neutropenic (neutrophils <500) source.] I could not find an...
  9. X

    Heard from Doc today

    Is she in the hospital or at home? Who prescribed the antibiotics for what? Hope the IV fluids helped and that whatever is causing this will settle down soon.
  10. X

    Heard from Doc today

    I'd also let them know her WBC was low last time they checked. With "almost faint"ing , does she need ER? Sending hugs.
  11. X

    Heard from Doc today

    Not listening to her lungs is negligence in my book. Was it a doctor or a PA/NP? Earlier this year, a PA told my son he had a mosquito bite on his wrist when he went to the office with a developing cellulitis even though he explained he was on Remicade. My son called me from the office and...
  12. X

    Heard from Doc today

    If it’s Delta Covid or Flu, there is treatment out there: Regeneron antibodies or antivirals ( tamiflu and the like). These both work best when given early on after symptoms appear.
  13. X

    Heard from Doc today

    I would retest for Covid. Was the test pcr or rapid antigen? The antigen tests have a lot of false negatives. The pcr can also be negative early in the illness. I think cugh and fever and immunosuppression warrant an X-ray. Hope she feels better very soon and this ends up being nothing serious.
  14. X

    Little Pilgrim has Opinions

    I’m not saying it’s likely but her dr should be looking at her and considering the possibility.
  15. X

    Little Pilgrim has Opinions

    The MRI raised the possibility of an infection of the T12 vertebral bone ( osteomyelitis). This is what the Merck Manual says: Vertebral osteomyelitis usually develops gradually, causing persistent back pain and tenderness when touched. Pain worsens with movement and is not relieved by...
  16. X

    Prednisone

    I believe the immunosuppression occurs as soon as you are on high dose steroids ( doses given to treat IBD). (Immune system changes can be seen after one dose.) My understanding is that people are at higher risk for infection during the time they are on high dose steroids.
  17. X

    Little Pilgrim has Opinions

    I had that thought too but would think she would likely have a fever and some abdominal tenderness in addition to the back pain.
  18. X

    Heard from Doc today

    I think it's actually a disability issue. If you/she talks to the disability office, I bet the university would be more flexible. I like your idea about surgery nearby if there's a good surgeon, team, hospital. It would be amazing if Tofa works well! He's not going to be the best doc ever...
  19. X

    Heard from Doc today

    21% only sounds good to me if there's no other option. I'm concerned too that her condition seems precarious. If Tofa doesn't work quickly, she would seem to be continuing to be at risk for serious deterioration. How much risk there is, I don't know. If he said, the new studies were using a...
  20. X

    Heard from Doc today

    I'm very sorry that the injection didn’t work, that she is losing weight and feeling ill and that the plan keeps changing. I had never heard of Tofa so I googled. I see Tofa is approved for UC and not for Crohn's and that "studies in CD patients were disappointing and the primary end point of...
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