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I am very sorry that you have been dealing with all of these troubling symptoms and glad you have a gi md who is listening to you now. Has recurrent endometriosis been ruled out? I understand your surgeon thought it was highly unlikely in 2015 so it probably isn’t that. However bowel...

I googled (google scholar) and only found old papers ( 25 years ago and older) reporting intra-arterial steroid injection in ulcerative colitis but I saw none about Crohn’s. I wonder how much experience this doctor / the interventional radiologist has with this procedure. Does not sound fun...

In NY, GI recommended for young adult w Crohn’s only on inflectra.

I just googled and found: “Until recently trans-abdominal ultrasound was rarely used for bowel assessment due to its difficult visualisation. Endoscopy, MRI, CT, and conventional radiography were the preferred imaging methods. However, over the past few years technological advancement and the...

Yeah that really is unclear. Can you contact the researchers for clarification?

I wonder if doctor would switch and if insurance (Medicaid) would pay for one of these if the reason is infections.

28 yo w Crohns (sm. intestine) well-controlled with inflectra (was on Remicade since 2014). Had a cellulitis in mid June requiring 2 night hospital stay for iv antibiotics. Cellulitis went away completely but now is back. I’m mom and thinking he shouldn’t stay on inflectra w recurrent...

Hoping it all goes smoothly!

“An isolated serum cortisol is often insufficient to exclude adrenal insufficiency”. From this .article. A cortisol level on the lower end of normal would be abnormal low if the person was stressed/significantly ill when the sample was taken. I think it would be worth finding out the actual...

Sharing this https://www.medpagetoday.com/infectiousdisease/covid19/91775 About this study https://jamanetwork.com/journals/jama/fullarticle/2777685 and an ongoing study vaccineresponse.org You need to register (free) to see the video or read the interview transcript with researcher Dorry...

I am sorry to hear about you son and wish him all the best. My reading of the NIH guidelines for COVID treatment (updated 8/27/20) is that doctors should only use steroids for COVID-19 in people who need supplemental oxygen or are on ventilators.

The CDC says: "We do not know yet if having antibodies to the virus that causes COVID-19 can protect someone from getting infected again or, if they do, how long this protection might last." https://www.cdc.gov/coronavirus/2019-ncov/testing/serology-overview.html The false positive rate of the...

My understanding is that there is a significant false positive rate, meaning that some people are positive when the person does not really have antibodies.

I found this https://www.plasmavie.ca/donner/medicaments/medicaments-g-h-i.en.html which says if you are taking humira regularly, you can't donate plasma.

Exactly my thought re:increased frequently coincidental with decreasing entocort. Bleeding wouldn't be caused by bile acid diarrhea, would it, so is the GI thinking there's ongoing inflammation and also bile acid diarrhea?

Thank you very much for the + vibes and this info! I was on the phone w the nurse, the companies, and insurance all afternoon. 39 minutes into a call w insurance, the call disconnected and they did not call me back. I am at square 1. I’m ready for a strong drink and I rarely ever drink...

My son has used Nufactor for 2 years and they have been excellent. Truly amazing service. Now insurance changed and choices are cvs coram, option care and Accredo. Option care can’t promise they can find nurses in our area; they don’t contract w nurses — just have employees. Any thoughts on...

I'm sorry you're dealing with this! Yes I would ask your GI about this. Have you noticed any abnormality in the appearance of your urine? Extra bubbles or air your urine? Did the urologist consider a fistula? Did they do a dye test? Fistulas can also occur between small or large intestine...

Thank you for posting a diagnosis. I am so sorry that it took such a long time to get an answer. I remember reading your posts and seeing how awful she felt and how hard it was, at times, for her to get doctors to take her symptoms seriously. It would be good if those prior doctors could know...

I've been rooting for O and I'm sorry to hear that she's having more Crohn's symptoms and now elevated blood sugars and just when she seemed to be really improving! I'm heartened that she seems to have a GI who appreciates how severe her illness is and is really working to find and get her...