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Crohn's Disease Forum

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  1. Dahlia

    Undiagnosed Club Support Group

    I thought hemmeroids gave you bright red blood, not dark blood. Dark means it's happening further up, right? Edited to add: you guys are too quick for me :)
  2. Dahlia

    Undiagnosed Club Support Group

    4? ouch! I think the worst mine was recorded was mid-teens and that made me really tired. That's with iron supplements. That's wonderful that you are at 87 now. I'm trying to get there. Still below 50, but getting there. Kitty-kat asking for a referral to a hematologist for IV iron is...
  3. Dahlia

    Undiagnosed Club Support Group

    Kittykat - Ferritin of 11 is awful and makes you feel like garbage. Ive had several doctors say you want it above 50. It can go that low from periods, though maybe yours aren't heavy enough. My daughters was 13, I think. She took iron for a year and it is better but still too low. Now she...
  4. Dahlia

    Undiagnosed Club Support Group

    Sarah - that sound a really uncomfortable, but I hope it helps. I hope the diagnosis helps, too. Kitty kat- I'm sorry you are going through all that. I hope your GI comes up with something to help. You're female, right? Any chance your period is contributing to your anemia? 17 is about...
  5. Dahlia

    Undiagnosed Club Support Group

    Cat - We homeschool so no IEP needed, and it doesn't seem to cause problems away from home. We did have her tested for dyslexia, which she has, and that diagnosis was hugely helpful and the things we have done differently have made an enormous difference. I'm just not sure the same is true (in...
  6. Dahlia

    Undiagnosed Club Support Group

    Sarah - that's great that they can start helping you in hospital. I hope that the feeding makes a big difference. Jabbe - all my medical craziness started with baby #3 as well. Pain issues for me, then migraines and now digestive problems. It was really weird. I don't blame my kids of...
  7. Dahlia

    Undiagnosed Club Support Group

    Concerned - I hope you get some answers. I am new to all of this and don't know if that sounds like IBD. It does sound difficult, no matter what it is and whether or not there is a name for it. I hope the tests and your doctors help you get the help you need. Little update for me - it's...
  8. Dahlia

    Undiagnosed Club Support Group

    I'm glad the nurse was nice. It makes such a difference. I hope the results help you get the care you need. Also, just realized my comment about hyperbole and a half was a bit odd... the depression page isn't funny, it is very good and her other stories which are mostly about her childhood...
  9. Dahlia

    Undiagnosed Club Support Group

    Good luck, Sarah. I hope it wasnt too awful. I second the recommendation of hyperbole and a half. Both the depression article and the stories about her childhood which are very funny.
  10. Dahlia

    Undiagnosed Club Support Group

    Colonoscopy results back. The biopsies were negative - it isn't microscopic colitis, which makes sense as it doesn't match my symptoms (undigested food can't be only the colon not doing its job). Now my GI will do more tests but I don't think she will order them till Monday.
  11. Dahlia

    Undiagnosed Club Support Group

    30 years to get a diagnosis? That's awful. I hope it's nothing like that for you. 7 is more than enough. Do you think your GI will think it is more likely that you have Crohn's now that your aunt has a diagnosis?
  12. Dahlia

    Undiagnosed Club Support Group

    Sarah - I hope you get some answers soon. It's so disheartening when doctors brush you off. It's hard to have the energy to keep fighting against them when you already feel awful. I hope the feeding at the hospital helps. Cat - thank you for the information about preps. I will definitely be...
  13. Dahlia

    Undiagnosed Club Support Group

    Definitely, I would be sunk without the grocery store. I have yogurt, applesauce, bananas, saltines, ensure, and instant Pho (rice noodles and broth). I like having more protein than that, but it will do for a couple of days. I think teriyaki could work, and we may be able to drive out and...
  14. Dahlia

    Undiagnosed Club Support Group

    Holy cow it is hard to eat away from home. I never realized how difficult it was for people with digestive difficulties. I've just been walking around oblivious for 40 years. We are out of town for a couple of days and I don't think there is anything I can eat where we are staying. We brought...
  15. Dahlia

    Undiagnosed Club Support Group

    Test done and the doctor didn't see any signs of Crohn's. I think there was some slightly unusual tissue but I don't understand what it was or means. They took some biopsies and I will hear about those later. They said something about maybe it being microscopic colitis, but reading up on it...
  16. Dahlia

    Undiagnosed Club Support Group

    I take miralax normally, to counteract my pain pills. I can't taste it. Makes no sense that the prep is so nasty. 3 hours of sleep bc of all those trips to the bathroom.
  17. Dahlia

    Undiagnosed Club Support Group

    Tonight's consumption is done. I am going to ask about the Gatorade prep the next time I have to do this. I had golytely and that is unpleasant stuff. Things I learned, that I didn't see elsewhere: - 2 straws are better than one - coffee works really well for a rinse and spit after drinking...
  18. Dahlia

    Undiagnosed Club Support Group

    2 cups down, 11 to go tonight. The last quarter of my jug is for morning. It's like lemon flavored seawater. Gross, but at least not quite as bad as Dave Barry's description (mixture of goat spit and urinal cleanser with a hint of lemon).
  19. Dahlia

    Undiagnosed Club Support Group

    Today I prep for my first colonoscopy. I don't have an appetite, which should make things easier.... but that nasty smelling gallon of liquid I prepared this morning is a bit daunting. I have a straw, have the gallon prep chilling, and plan on rinsing my mouth out with some strong tasting...
  20. Dahlia

    Undiagnosed Club Support Group

    When I have looked at doctors profiles on the clinic's website, they usually have a little blurb about themselves and what they specialize in. Is that what is meant by an IBD specialist? A gastro who says they specialize in IBD?
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