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Hello All, Happy New Year! An update about my son. We got his fec cal done last week and it's at 1400. Strange!! He says, he's feeling really good. His last scopes were in early 2019. The doctor said, we will schedule his scopes soon. His Humira level was very low and hence we switched to...

Thank you. I'll keep in mind and ask to add MTX, if Humira alone is not working.

I'm having a hysterectomy in 4 weeks. So, I'm not pushing him too much. My husband can only handle one patient at home. Moreover, doctor wants to wait for 3 months to see how his new dosage of Humira is working on him. He's already on weekly doses from the last couple of weeks. He's okay to have...

That's amazing to hear. So happy :)

Thank you all for the detailed responses. Hope once a week does the trick for him. We stopped Imuran in the last week of May. I do not want to start it again. Doctor was asking us to start Imuran back. Doctor said, he doesn't want to add a new medication MTX during this time. So, for now...

Thank you all. My son did respond to anti-tnfs well. But, he's metabolizing medicine really quickly. I was thinking, should we do loading doses of Humira again. Would that help? He's doing much better than how he felt last year before starting Humira. But, still not completely there. So, I...

Update again: His Humira level came down to 1.9. Very low according to the doctors and we decided to do it every week (40mg, every week). We were doing 40mg every other week. I'm starting to wonder..., is this increase sufficient? Looks like he's eating up his Humira and not his food. My...

Thank you all. We had his fecal calprotectin tested last week and got the number as 900+ Our doctor is suggesting the scope. He is on Humira for 7 months now along with Imuran. We are doing an antibody and Humira level test next week. Plan is to increase the Humira if the level is low. He's...

My son's GI doctor is not in favor of MTX. No idea why? He keeps telling that, all medications come with a side effect and Imuran has worked for your son. Why do you want to stop it or switch now? The doctor is ready to take him out of Imuran once his condition is better. We will do a follow up...

He started on adult dose( 40mg per 14 days) and doing the same even now. He had his loading doses in the first week of October 2019. So, it's almost 4 months. It is working and he's slowly getting better I suppose. He is on a flare from the last 18 months.

Updates on my son. He is on Humira 40ml every other week with 75mg Imuran/everyday. He seems to be okay. He tapered the prednisone in October'2019 and no blood in stools. His last colonoscopy(Feb 2019) showed inflammation in duodenum and his symptoms were severe nausea, vomiting. He still...

Thank you all. Your answers are assuring! I was concerned because his GI doctor said.., he hasn't heard of the reactions before from other patients.

Hi! My son started Humira 3.5 months ago. He's on 40mg every other week along with Imuran 75mg. He seems to be doing good health wise but he's having very bad injection site reaction after couple of hours of the shot. The pen is citrate free. He did not have reactions during the first 4 shots...

wow! That's great to know. Hoping that happens soon for my son.

Thanks a lot Maya142 for your comforting words. My son is on Imuran from the last 2.8 months. Hoping to stop it soon. Imuran was a wonder drug for him, while it worked! Update: My son completed loading doses of Humira and will start his maintenance dose from next week. No side effects for now...

My son had his loading doses of Humira on Oct 1st. He had his second shot couple of days back. So far so good. No side effects. He is 13 years old and is tapering Prednisone (15mg this week!). He is also on 75mg Imuran.

Great to know that fiber is good for IBD patients. I thought it is the other way around. Thanks for sharing the info. I can tell my son's experience. He had a moderate to severe activity at the time of diagnosis. His disease activity was limited to his colon. I used to monitor his poop everyday...

I'm also Indian. My son has Crohn's disease. He was diagnosed in April, 2015. Diet didn't play any role for my son. I actually feel, diet totally depends on the disease location. If your daughter has Crohn's in the colon, fresh fruits and vegetables have to be completely avoided. Infact all high...

Do not worry too much. Wait till they do another set of blood tests in the next couple of weeks. Or ask them to repeat the test. As many of them say, it could just be "one of a thing". It did happen to my son too. He had elevated liver numbers twice consecutively and we even saw a liver...

Finally my son started loading doses of Humira (adult dose) this week. He is still on 20mg prednisone and 75mg Imuran. The plan is to stop Imuran in the next 6 months. Meantime, we also got the second opinion from Boston Children's Hospital. They are recommending us to get a in-person second...