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Couple of questions.., 1. How risky is it to start Humira as a monotherapy and then add in MTX after couple of months? I do not want to give Imuran and Humira together. Trying to avoid it as much as possible. 2. My son's GI suggestion is to give Imuran and Humira together for 6 months only and...

Update: I called the doctor 2 times to convince him for the dosage recommended by the Humira site. He did not seem to get convinced and finally, ased me.., what do you want me to order him. I firmly said.., whatever the Humira site recommends. He took a deep sigh and said.., as you say. I wonder...

Update on my son: Humira is approved from the insurance. Our doctor has recommended pediatric dose for my son. My son is a little over 40 kgs and our doctor wants to start with lower dose. Our doctor (as usual) doesn't want to pump unnecessary medicines. If lower dose doesn't seem to work, we...

That's nice to know that the appointment went well and you are happy with the doctor's recommendations. I also agree on the bridge therapy. You do not want your kid to go without medicines for 4 to 6 months. My son is flaring too from the last 8+ months. We used entocort as a bridge therapy...

My mom-in-law tells the same thing to my son all the time. She says.., your dad was so tiny when he started his 8th Grade. He started growing when he was 14 or so.., but this kid feels so bad for his height. We will ask for an appointment with endo soon. Just to be sure. Your inputs are very...

But for my son, it's always reverse. His PPD test comes negative and blood test as "indeterminate". And his GI is not American. He has got a BCG vaccine too and he gets PPD test every time, he comes back from his home country. The doctor's blood test comes as " indeterminate" too :)

My son drinks pediasure as elemental formula. He is drinking it since his diagnosis. About 50% of his calories come from Pediasure. He will soon transition to Boost or something else. He has no problems drinking it. We did meet the Endo couple of years back and she didn't seem to be bothered...

My son's quantiferon gold test comes as indeterminate because of his BCG vaccine. He got that blood test done last week. Most Indians born in India get BCG vaccine. Hence, his GI does both the blood and the PPD test.

My son is 92 lbs and 4 ft 10 inches. He is the shortest in his class. He will start 8th grade soon. Thank you for all your responses. We had his PPD test today (because of our recent travel to India), will need to wait for 48 hours for the result.

My son did not catch any infection when he was on Imuran. He felt his best with that drug. The antibiotic use was before he started Imuran. He fell sick many times when he was on Remicade and got C-diff too. But, none with Imuran.

Nelsonshan, Your story is so much like my son's (with respect to eating habits). His choice of food is so so limited. He however eats pizza, mac n cheese, pasta, grilled cheese sandwich, rice and yogurt (we eat a lot of it at home. We are Indians). I make basic plain yogurt at home every day...

We met our son's GI yesterday. I told him that, we are not in favor of increasing his Imuran and we also told him about getting a second opinion. He did encourage us to go ahead and get a second opinion. The GI asked us to start him on Humira as soon as possible. The doctor wants my son to be on...

No.., Our doctor is not in favor of that and I do not think our son would do it too..

Thank you all for your valuable time and feedback. We are meeting his GI on Monday. We will talk to him about the second opinion. Meantime, we have already decided to take the online second opinion from Boston Children's Hospital. Based on the opinions we get from the Boston Clinic, we will...

Hi, I'm back. Let me brief my son's journey so far. We are basically from India, living in United States from the last 7+ years. My son was diagnosed with moderate-severe Crohn's disease in April'2015. His Crohn's disease was limited to several parts of the colon. No involvement of small...

Nice to know that you are in remission. What do you mean by medical food? Did the doctor accept to do FMT?

Thank you all..he is getting his regular blood work. Doctor wants to check for TB before starting Humira. We are discussing whether to go for Humira or Imuran. He was on Remicade and it did nothing for him (he got a bunch of infections and was always sick). Also...my gut says...let him try...

Thank you all. We had a great trip. My Crohnie kid did very well and we didn't have any problems. Knock on wood. He liked India and got so much love from his extended family that. ..he says. .he wants to relocate to India.

Did you finally travel to India? How was your experience?

Thanks a lot Madhu. We did speak to his doctor. He's okay with my son traveling. Is it okay if I PM you? Sorry. .if I'm asking for too much.