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Crohn's Disease Forum

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  1. M

    Help needed in deciding the medications. Doctor is suggesting Remicade.

    As I mentioned before, my son just started on Remicade. He had his second infusion last week. He's not better yet and we are waiting for the miracle to happen. During the second infusion, the nurse said she needs to do the regular blood work. This morning I get a call from the doctor saying "my...
  2. M

    Liver enzyme concerns

    As I mentioned in one of my other posts, my son just started on Remicade. He had his second infusion last week. He's not better yet and we are waiting for the miracle to happen. During the second infusion, the nurse said she needs to do the regular blood work. This morning I get a call from the...
  3. M

    Seven Years and Counting

    Thanks for sharing your story. It gives a lot of strength to the mom's whose kids have been diagnosed recently and are trying to find the right medications.
  4. M

    Help needed in deciding the medications. Doctor is suggesting Remicade.

    Thanks a lot everyone. My son got fever (out of no where) yesterday night. He did have fever tonight as well. I rang up to the GI nurse and she suggested me to meet his physician immediately. We met his GP (or Physician) too. My son doesn't have any other symptoms. He has fever and very little...
  5. M

    Looking for a good pediatric IBD specialist in and around Detroit

    Thanks a lot Maya142 for your detailed reply. We finally had to listen to the doctors. My son got his first dose of Remicade this afternoon. Getting the inflammation in control at this moment was more important. Now that we started remicade, I have other questions running around in my mind...
  6. M

    Help needed in deciding the medications. Doctor is suggesting Remicade.

    Update on my son... We got the second opinion from the University of Michigan and the the new doctor also recommended Remicade. The new doctor verified my son's diagnosis again (She got the tissue samples from our hospital and re-confirmed the diagnosis). We finally had to accept and my son...
  7. M

    Help needed in deciding the medications. Doctor is suggesting Remicade.

    Thank you all for your valuable time and comments. We did meet the pediatric GI specialist at UoFM, Ann Arbor. The new doctor is also recommending Remicade for him. According to her, he was never in remission even when he was on full doses of prednisone (which is true). So, she doesn't want to...
  8. M

    Help needed in deciding the medications. Doctor is suggesting Remicade.

    My son (8 year old) was diagnosed with Crohn's in April 2015. He was on a course of steroids (30mg. His weight was 50 lbs) for 8 weeks and then tapered. He was admitted to get IV steroids for 3 days. The steroids have definitely helped him, but he's still not in remission. Our doctor did C-diff...
  9. M

    Looking for a good pediatric IBD specialist in and around Detroit

    Hi, My son is diagnosed with moderate-severe Crohn's 6 month back. He was put on a course of steroids and got admitted for IV steroids too. But, his symptoms have not improved. Now, doctor wants us to try Remicade. We are basically from India and we are in Michigan from the last 4 years. We...
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