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Herb had his ileostomy in December and despite having a severe abscess develop over Christmas for which he had a stay in hospital, he has now recovered, put on 5kg, has so much more energy, a good appetite and is back at school! I am truly amazed at how well he seems at the moment. He is also...

My son had a bad flare up of this Crohn's in December and he was given a 5-day course of IV Methylpred. in hospital together with a 6-week course of Cipro . The response has been remarkable. He's gone from really ill and not wanting even to leave his bed to being back at school! That was 5...

Thanks so much for all this advice. I have already taken action! I have now managed to speak again to his paediatric consultant and she has established funding, so we are doubling his Humira from next week, to see if this can make enough of a difference for Herb. In the meantime we have...

Thanks for sharing your experience. It sounds like you have benefitted from the surgery medically and encouraging to hear you actually put on weight. Great advice about the protein drinks. I'll get him to drink those now. He aspires to be a mountain-biker so that'll appeal to him!! He's still...

My 15 year old son has had many problems with peri-anal disease - no fistulas but severe fissuring, infections and pain in the rectum. After EUA he has been advised to have a temporary ileostomy (c.12 months) to see if they can heal the fissuring. The more I read about patient experiences the...

Thanks for all your words of support. I'm a novice with this whole forum thing but will have a look at the Humira sub forum and the parents one, that'll be useful - but how great to have so many friends on tap who understand what it's like. Thanks for being so welcoming. It's really encouraging...

My son is now 15 yrs old and has suffered badly with Crohn's for 9 years. He is also affected with oral crohns. He is now at the age where he will need to deal with things more on his own but of course I want to be able to continue supporting him which is why I have joined this forum. I do worry...