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    New diagnosis of UC and Enteropathic Arthritis

    Yes!! I am seriously hoping to get off of them at some point. How long have you been on them? I was told I wouldn’t have to be on them once I started my biologic but shortly after they told me I needed to be on them again. Even when the inflammation in my colon improves nothing seems to be able...
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    New diagnosis of UC and Enteropathic Arthritis

    Are you on anything else? I get inflectra infusions so I don’t think I could be on humira. But I’m not sure how it works… I also do injections of methotrexate, I don’t know if you’ve been on the before, if you have did it not work for you? How long have you been on humira?
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    GI says he is 99% sure I have chron’s

    I can’t really say since I’ve never been on it but my experience with inflectra was that it took awhile to have a solid stool. I haven’t really experienced diarrhea outside of my first big flair, even when my inflammation and other symptoms have come back the diarrhea doesn’t. But I was having...
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    GI says he is 99% sure I have chron’s

    Hi!!! I’m not sure for Skyrizi specifically but most biologics can take 1-3 infusions or about 16 weeks to notice really significant benefits, though some people feel better very fast. It can also depend on if you were being treated before or if this is your first treatment. Since it seems...
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    New diagnosis of UC and Enteropathic Arthritis

    Thanks! I’ve started keeping a food log again and have been able to mitigate some of the cramping and abdominal symptoms though the nausea is still present and I do occasionally vomit after eating though having small meals does help that. Mostly I’m writing because I just had my colonoscopy and...
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    New diagnosis of UC and Enteropathic Arthritis

    Thanks for the advice! Honestly I’ve had so many people ask me if I’m going to try the carnivore diet or something like it and I never know what to say besides no and I can’t every seem to end the conversation.
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    New diagnosis of UC and Enteropathic Arthritis

    I’m off dairy and gluten mostly to get my mom off my back. She fell down a diet rabbit hole when I was diagnosed and is constantly asking me what I’ve eaten or if I think cutting something out could “fix” my problem. She’s not agains my meds or anything but if I ever complain or mention having...
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    My Story

    I was diagnosed with Uclerative colitis and enteropathic arthritis about 7 months ago, at 19. I’m in my second semester off from school, though I’m going to start working full time again and that feels pretty good. I will admit I have a lot of anxiety about my health now because my UC came on...
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    New diagnosis of UC and Enteropathic Arthritis

    I’ve had so many people tell me I should try a more restrictive diet to try and fix it. The research is often so contradictory though and I honestly can’t usually feel a difference based on what I eat. Has your kid tried a special diet? My GI hasn’t made any recommendations but I was told by a...
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    New to all of this.

    Hi I’m 20 and I was diagnosed with UC at the beginning of this year, for me it happened very suddenly it got bad really fast and I spent days in the hospital before they even had any answers for me. I have autism and also suffer from generalized anxiety disorder. I spend a lot of time worried...
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    Calprotectine levels?

    From what I know it just measures inflammation that is currently present, it can’t say if the inflammation is chronic. 290 while high isn’t anything crazy and could definitely be explained by document rectal inflammation. When I was diagnosed with UC my calprotection was well above 1000 though I...
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    New diagnosis of UC and Enteropathic Arthritis

    Things are okay I guess. I started methotrexate injections and while the side effects are the same it seems to be actual working to help my joints more than before. The poop regimen seems to be working as well though I had to start mixing my miralax with Gatorade powder because I can’t stand the...
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    New diagnosis of UC and Enteropathic Arthritis

    I’m already have accommodations at school, I have autism so I’m registered with the disability services office, though they might be able to add additional accommodations now. I can talk to my counselor about it. I will definitely look into support groups and see if there is something in my...
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    New diagnosis of UC and Enteropathic Arthritis

    Somewhat… sorry I thought my other post was a reply oops
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    New diagnosis of UC and Enteropathic Arthritis

    I’m also starting a new job soon, it’s not too many hours or strenuous work, but I will be working more than before, and I’m starting back at school in the fall. I’m a little worried I won’t be able to handle it all but I’m pretty happy to be getting back to things. (A little life update if you...
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    New diagnosis of UC and Enteropathic Arthritis

    Sort of, my methotrexate was upped to 20 mg and I am now split dosing which went okay. I’ve also started taking my omeprazole daily which has helped some with the nausea. It seems like the zofran wasn’t the cause of constipation as I stopped taking it but am still struggling with constipation...
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    New diagnosis of UC and Enteropathic Arthritis

    My rheumatologist thinks I should continue my weekly dose as I am apparently tolerating it well. I was prescribed priolosec out of the hospital but didn’t take it beyond the first week as I wasn’t sure it was needed and was worried about long term side effects though I have recently been...
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    New diagnosis of UC and Enteropathic Arthritis

    Hi, just a quick update before look for advice, my joint pain started doing a lot better after my last infusion and I was feeling pretty good! Unfortunately I started feeling pretty bad about 2 weeks ago (6 weeks after my last infusion) and noticed blood in my stool. I got a stool test done and...
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    New diagnosis of UC and Enteropathic Arthritis

    If you have any specific recommendations for products, exercises, etc. feel free to share those I would love to take a look or if there is something you think I should talk to or ask my doctor about I would be interested in hearing that. I’m looking for many perspectives and experiences, just...
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    New diagnosis of UC and Enteropathic Arthritis

    Hi! First I just want to note I am female (not that it’s super important) also I’ve done a lot of research since my diagnosis and understand what you’re saying. At the moment I have made all the dietary changes I can make within my financial and personal means, I also take supplements...
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