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So NOT the Crohn's Prognostic test just the one IBD test

OK, looks like the last thing on the Ordered list reads: Prometheus IBD SGI Diagnostic custom

Oh!! I so appreciate the clarification. Thank you! I'm getting ticked off as our Dr said NOTHING about it other than "here are the orders for her blood work, you can use our lab or quest" no oh, by the way I thought it would be a good idea to do this Prometheus kit because it tests for etc...

Thanks Sascot! Glad to hear your son is doing well and things are relatively uneventful. It gives me hope. I appreciate your input. Thanks.

Thanks Jacqui! No need to apologize about being "late" to the thread, I'm just so very grateful for any insight. So is Prometheus kit either genetic testing OR testing for IBD specifically UC, CD, and Celiac? I was under the impression the determination of the IBD dx was via genetic markers in...

Those are all very good points to keep in mind and hopefully that will be the case for her. Thank you all for such helpful and supportive replies.

I know she doesn't know anyone with it...other than what my Mom has gone through (which has been bad) she hasn't seen anyone functioning with any IBD at all either. She doesn't really harp on the details as I do, she either feels well or not. Simple as that. Maybe that's the best way to handle...

That is reassuring. Thank you.

What a great idea for older kids....teens & young adults especially in high school or going off to college. I've thought about calling the counselor but there really isn't anything anyone can do. I'm sandwiched between my parent and my child...with eerily similar problems....and try not to vent...

I was overwhelmed when they sent Dr, nurse, nutritionist and counselor. I may be forgetting someone - it was like a clown car..but I mean it in a good way.

Do you see social workers or counselors you talk to or your kids talk to at each GI visit?

You are ALL AWESOME!!! THANK YOU!!! Makes perfect sense reading your replies...especially explaining the granulomas. We are currently with a children's hospital and I do think they have followed what most of you have had done. Did xrays, ultrasound, CT scan, MRI, lower & upper endoscopy, liquid...

Thank you for your reply. I appreciate the support...even if you don't have answers!

Hi All! I posted in May when my daughter became acutely ill spending 2 wks in hosp initially Dx w/Crohn's via endoscopies but biopsies came back neg so docs "back peddled" expecting infection to be culprit. 2 months later, daughter had mouth ulcers and repeat nausea/diarrhea but no bleeding. In...

Hi! I've been posting over on the parent board re: my daughter's confusing crohns/infection mystery and as luck would have it last Friday my mom who has severe UC was admitted to the hospital for uncontrolled bleeding despite 6mos of Remicade and 40mg prednisone daily. They were ready to remove...

I'll ask about the mouthwash - thanks for the good advice. I guess when the drs. say "what she has will eventually reveal itself" that includes each new symptom that appears ... or doesn't. The "not knowing" is wearing me out.

Hi All! Posted a few weeks back re: 16 yo daughter and confusing Crohn's diagnosis/infection questions. She has now developed a sore (for lack of a better word) under her tongue, right side only that is quite swollen and uncomfortable. Anyone experience this as a side effect of budesonide or...

So here is what I was referring to. It states IBD, not specifically Crohn's or UC. It was from an article titled "Crohn's Disease and Infections. A Complex Relationship" from ncbi.nlm.nih.gov MedGenMed 2004 Diarrhea and Colitis in Immunocompetent Patients Acute Diarrhea (< 1 Week) Acute watery...

They did upper and lower scope and as pain and vomiting continued when she would drink water two days then 4 days later (we were still inpatient) they repeated X-rays and did MRI Looking for small bowel obstruction or anything else they'd be able to see. Didn't find one thank goodness. They did...

Thanks so much for your help! I had the same thought and asked the GI - they did biopsy for it but I called my allergist anyway who echoed just what you said about gluten but explained a little more about small bowel involvement and the fact she had no weight loss or diarrhea at all prior to...