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More good advice. Thank you. I need to look through the huge folder of results and bloodwork and med info sheets and see what I can find. Though we haven't had years of tests etc she's always been prone to nausea and vomiting...again attributed to dairy sensitivity now milk allergy which we...

That makes sense and they didn't really explain it as well as you - thank you. while we /she was in the hospital as an inpatient the nurses came right away and zipped it on down to the lab..for at least two of the days the tests were ordered. They did offer two other possibilities the first that...

Thanks for the warm welcomes and helpful advice. Dairy is officially history and the journal is a GREAT idea...thank you all!

THANK YOU My Little Penguin for your fact filled reply! I actually called our allergist this afternoon and several of his comments overlap yours. Thank you! We did a skin test for her allergies and she was only mildly allergic to milk (along with pets and grasses and pollens) and like me has an...

Very good question! We specifically went to the children's hospital affiliated with a well respected children's clinic but I did not like the GI doc we saw in ER. Turns out he was a resident and not the doc we saw once we were admitted. I liked the new one very much, felt comfortable and...

Gosh, DanceMom, I'm sorry to hear you're in a similar boat. I actually asked for a pediatric rheumatology consult incase the intestine was a part or symptom of a bigger systemic issue. The GI disagreed but did it anyway. Have you gone that route yet? We did blood test -ANA that can shed some...

Where do you get the strength and focus?

God bless you and your sweet babies and extended families dealing with this diagnosis FOR SURE day in and day out...

At the end of everything struggling to figure it out they left it as severe infectious colitis in absence of any positive stool samples (tested repeatedly). They said her milk allergy has nothing to do with the severe inflammation. They also said the inflammation could be from either chronic or...

Oh, and Zofran for nausea that seems to be less and less each day. Overall she's much improved but I can't shake the feeling this isn't the end of it....Partly because of the misdiagnosis and partly because she's had unexplained nausea/vomiting off and on throughout her childhood which we...

Thanks for your reply, xmdmom! Yes, you're right, based on colonoscopy Tues am they Dx Crohn's. it is even typed on Dx of colonoscopy report in black and white. Late next day Wed pm the biopsies came back with no evidence of Crohn's. Dr was so sure she went through treatment plans and...

Hi All! Have had a very scary two weeks in the hospital with my 16 yo daughter. I initially thought she had picked up a bug and had terrible stomach pain, nausea and diarrhea in the middle of the night. Suddenly she began bleeding and I took her straight to the ER. They did a CT scan and noticed...