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Crohn's Disease Forum

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  1. kittykat234

    Undiagnosed Club Support Group

    Hi all, It's been a while since my last message but I just wanted to give you all an update. So I went to the urgent care the morning after my last message and told them everything that was going on and if they could run any tests while I was there. They said that the most they could do is...
  2. kittykat234

    Undiagnosed Club Support Group

    Oh, sorry! I didn't see your recent message, I'm kind of in a hassle right now. Yes, I will do that, thank you. I'll let you all know how everything goes.
  3. kittykat234

    Undiagnosed Club Support Group

    I would see my GI but she's only available on Tuesdays and is usually booked. The closest appointment I would get is probably in a few weeks. That's why I want to go to the ER, because they might be able to get me an appointment with a GI earlier. I have told my parents about the pain and the...
  4. kittykat234

    Undiagnosed Club Support Group

    I'm going to try to find a nurse hotline, that seems to be the only option. I'm going to try to get my parents to take me to the ER either tonight or tomorrow morning. I'll let you all know how it goes. Thanks for your help.
  5. kittykat234

    Undiagnosed Club Support Group

    I can't drive and I don't know how to get there on my own. I would wait for my parents but the pain is really unbearable. They're not answering their phones, I don't who else to call.
  6. kittykat234

    Undiagnosed Club Support Group

    Oh god I'm in so much pain right now. My parents are at some concert and they're not answering their phone, my doctors aren't replying to my messages and I really don't know what to do. I'm having awful pain in the middle of my stomach and in my left ribcage. I'm alone at home and I really...
  7. kittykat234

    Undiagnosed Club Support Group

    We have not gotten a call from the colorectal doctor. It has been over three weeks since we got the referral and still nothing. And I have gone to my PCP and she agreed that we should look into the bleeding further, but the only thing they can do is the capsule endoscopy. However, she said...
  8. kittykat234

    Undiagnosed Club Support Group

    Okay, so I really am at my wit's ends right now. I couldn't sleep at all last night because of really bad stomach pain and I've been having really dark, almost black stools for the past two weeks or so. The pain actually gets worse after I use the bathroom. I'm thinking at this point, I really...
  9. kittykat234

    Undiagnosed Club Support Group

    ronroush - thank you So I forgot to mention that the MRI I had wasn't specifically for the small intestine, it was for the entire abdomen and pelvis. I'm not totally sure what this checks, so does anyone know if an MRI is as good as picking up small bowel diseases as an MRE? My PCP hadn't...
  10. kittykat234

    Undiagnosed Club Support Group

    cmack- Thank you for your support. I'm sorry you had to go through all that. That's so crazy, how something so bad that it required surgery was missed on so many tests! Medical mysteries are the worst, you feel something is wrong, you have all these symptoms that can't be explained, and you...
  11. kittykat234

    Undiagnosed Club Support Group

    Dahlia - I'm so sorry about what you're going through, I myself had a bunch of tests done and everything looks "normal", yet I have pretty much every gut symptom you could possibly imagine. So I got my MRI done on Monday. Went well, they told me my results should be online in 2-3 days. I just...
  12. kittykat234

    Undiagnosed Club Support Group

    Izzie - I am very sorry about your father. It's never easy losing someone so close to you. My condolences to you and your family and I hope you get an answer on your health issues. I had an appointment with my PCP today, some good news. She was very understanding about my concerns and agreed...
  13. kittykat234

    Undiagnosed Club Support Group

    So I had a blood test done a few days ago and my results came back today. They don't look too bad, hgb is still low at 11.2 (.1 higher than last time) ferritin 17 (slight improvement from 11), iron 90 and hematocrit lower end of normal at 35.4. These numbers aren't ideal, but I guess at least...
  14. kittykat234

    Undiagnosed Club Support Group

    Thank you so much Ron and cmack, both of you have been incredibly helpful and understanding. I also don't see the reason for the colorectal surgeon, but I do think that if I consult with him/her they will agree that this hemorrhoid should not have to be removed by surgical means. I mean, just...
  15. kittykat234

    Undiagnosed Club Support Group

    Ugh I'm so disappointed. I just had my follow up with the GI and it went nowhere. I told her about the blood and how I don't think it's just a hemorrhoid, but she said that hemorrhoids can cause a lot of bleeding even if it's small. She also said a hemorrhoid shouldn't cause anemia, but she...
  16. kittykat234

    Undiagnosed Club Support Group

    Going for my follow up tomorrow morning. I'm going to try to push for a small bowel study. I just hope the GI doesn't try to convince me that it's "just IBS". The problem with me is that I tend to agree with the doctors when I'm with them and just take whatever they tell me, and then I leave...
  17. kittykat234

    Undiagnosed Club Support Group

    Hey everyone, just wanted to give you guys a little update on my situation. So I got the biopsy report back from my colonoscopy and it said all samples taken from the colon and end of the small intestine (terminal ileum, cecum, ascending colon, transverse colon, descending colon, sigmoid and...
  18. kittykat234

    Undiagnosed Club Support Group

    I have done a stool culture and ova and parasite test. I have been tested for celiac both by biopsy and a blood test, both which were negative.
  19. kittykat234

    Undiagnosed Club Support Group

    Maya - what kind of infections? I have taken a stool test for parasites, which came back negative. I don't know if I have been tested for any bacterial infection.
  20. kittykat234

    Undiagnosed Club Support Group

    Maya - I have been and will continue to follow the plan. You said it's unlikely to be IBD, but what else do you think could it be then? I turn 18 next March
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