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Thank you MLP! I haven't been on the forum for a few months now, but seeing you and some of the others who are active on the forum is like seeing an old, trusted friend. Don't get me wrong though, I'm sorry that any of us are here. But I can't tell you how much the support of other parents...

More good suggestions, thanks so much!

Just added these things to my list - thanks so much! Really good idea about earplugs!

Hi everyone, My 16 year old is going to have surgery in 2 weeks (illeocecectomy - not sure if I spelled that right). It's elective, because right now she is "well". We are gearing up for an anticipated 1 week stay at the hospital. We've been very fortunate not to have gone through any...

That's interesting about your son's MRE's always done when he is on his stomach. I wonder if they could do his on his back? I asked the tech about it and they said they get less movement and better pics when they are on their stomach. I just thought it was interesting that the other two...

Update: My daughter had the MRE this past weekend and drank Breeza for the prep. Her experience was: the taste was 100 times better than Barium; that it didn't burn like Barium and it didn't make her nauseous like Barium did. I don't know how the scan came out yet - hopefully it's clear...

My DD is 15 and has Crohn's as well and has loud rumbling at times as well. I just thought this was part of Crohn's, but I honestly don't know if you only hear it if things are very inflamed or blocked or what? Interested to see what others say. She is on Remicade and 6-MP and mostly...

Wish they would use milk here, Dusty! I asked a few tech's about it, but they all seemed reluctant to do it unless you were allergic or couldn't tolerate the Barium. So frustrating! Thanks for your response!

Update: Swelling may have gone down slightly, but I'm not sure. Still no other symptoms except now, lower back pain. But I think this is likely unrelated and more so due to band camp that started this week! (PSA: don't Google "swollen lymph node in neck & lower back pain". Ugh!). Going...

Thanks Carolin - Interesting!

:-(

Thanks MLP. Bummer that it was only a slight improvement on taste and about the nausea. That's good to know though - at least I won't get my daughter's hope up too high.

I heard from a parent at a local support group that her daughter drank Breeza as a prep for an MRE and that it tastes much better than the usual Barium. I only know of one facility locally that is offering this method (though there could be others?). Anyone have experience with this? Just...

VERY reassuring, thanks, Clash! Thought about allergies, but she's never had any (not that they can't develop). But interesting about your reactive node as well. Thank so much!

Thank you for responding! At her doctor's appointment, they told her that they would only really be concerned if the node was red/hot/painful. It's not. It's slightly sore to the touch - but not pink/red at all. So it's not likely an infection, I suppose....

I realize that a swollen gland can mean lots of common and innocuous things, especially in a person who is immunosuppressed, but... My 15 year old has been on a combo of Remicade + 6mp and has had a swollen gland on the left side of her neck for about a week. We took her to the pediatrician...

Interesting stuff, thanks!

Yes, but thanks for pointing that out, just in case!

Thanks Jennifer!