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Thx Jacqui... He can eat.

Yes.. the fecal calprotectin results were NEGATIVE. Our second GI was very focused on this. In fact, she relied heavily on this test along w/ endo / colonscopy results. My boy sleeps with his hand on his stomach. When he sneezes... he grimaces and cries. This is awful

how was your child diagnosed? I can't believe a high profile Ped GI doctor from a nationally ranked hospital cant make this diagnosis? In fact, she's "almost" completely ruled out crohns. BUT... the first doc we saw said it's either crohns or appendicitis.

The odd thing with my son is there's no "inflammation". However, the lymph nodes in the ileum are raised. The doctors said that's common in children and not to worry. He was very constipated and had to go on laxatives for 5 days ... he is finally normal. But was definitely blocked up...

Ocean: can I ask which test or observation led to your diagnosis. I realize there's no simple test. However, many folks whom I've spoken to were diagnosed by colonoscopy -- very visable.

Thank you Ocean. I think it is Crohn's as no one can figure out the cause of his pain.... swollen lymph nodes and mouth sores. It's amazing how quickly our Pediatric GI doctor .. gave up.

Hi everyone... this is my first post. I appreciate all replies / guidance. My 13 yr old son has been in pain for 7 weeks. Lower right side of belly button. Our first GI doctor said it was either appendicitis or Crohns. Fearing the worse, we changed doctors and went to one of the top...