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Julie..so I am now assuming that a stoma is the same as a colostomy. Sorry, I am a bit clueless with some of the different terms. Mason is worried that a colostomy will be embarrasing at school and kids will find out and make fun of him. It might be our only option down the road.

Mark.. we had Mason on complete bowel rest for 3 months and it did help. He had a pic line in his arm and wore a backpack that fed him with intravenous fluids (TPN). He gained 11 pounds and his bottom got better but as soon as he went back on food it flared up again. Drs have not discussed a...

Mark..Mason was okay before 9 months old. He started experiencing severe constipation when I begin to introduce him to solid food. His CD only affects his bottom and causes fistulas, fissures and skin tags. He has very painful bowel movements. He always has a fissure or fistula but no...

Thank you Julie. I am sorry to hear that you too suffer from CD and I hope your fistula/abscess heals quickly. My son's name is Mason and he is such a strong kid. I have done so much research and even found a pediatric crohn's doctor that wrote books on pediatric CD. I took Mason to see this...

Hi Mark. I just edited my post because I am new to this forum and wasn't sure what I should write but my story is now posted. Thank you for your concerns. He is not on a special diet. He does drink Boost Plus as much as possible because he has never made it on the growth chart. He is very small...

My son has suffered from Perianal Crohn's since 9 months old. I have taken him to every major clinic in Florida but only his current doctor in Tampa has been able to help him but I need to know if there are more options for him. He has had so many fissures and fistulas and currently has about 6...