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Crohn's Disease Forum

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  1. R

    Misdiagnosis/answers/advice

    Thanks Eleanor_Rigby, don’t worry I know what to look out for. Hopefully I get some answers soon.
  2. R

    Misdiagnosis/answers/advice

    Hi Jabee. It’s so frustrating isn’t it? I know exactly what you’re going through. Unfortunately I don’t think I can get an urgent referral as they don’t think my case is serious enough. Honestly. Because my investigations (biopsies, rectal exam, colonoscopy), was all clear they will not urgently...
  3. R

    Misdiagnosis/answers/advice

    I doubt it, my GP just said ‘I know you’re uncomfortable and I’ll do my referral but because you’re not suspected of possibly having cancer it could be a few months wait but I’ll do my best’.
  4. R

    Misdiagnosis/answers/advice

    Just got a phone call back from doctor. She said referral to gastroenterologist could be a few months wait. 😭
  5. R

    Misdiagnosis/answers/advice

    Also got woken up at 2am with severe severe stomach pain, if they are going to tell me ‘that’s just IBS’, I am going to crack up.
  6. R

    Misdiagnosis/answers/advice

    Hi everyone. So, went to my GP the day. Due to the computer system being down she was unable to see the letter that the pout of hours doctor sent! 😡 Again, I had to explain everything to her and she was not very understanding. She said to get bloods done, which I could not do due to computer...
  7. R

    Misdiagnosis/answers/advice

    Thanks everyone. Will keep you all updated 😊 I am relieved he’s given me (going to arrange for my GP) to give me a sick line for work till I get myself sorted. I work in a care Home, so my job is quite stressful as well as being physically demanding at times too which I cannot handle atm with...
  8. R

    Misdiagnosis/answers/advice

    Hi Jabee. No he didn’t put me on antibiotics as he says they can make bowel issues (such as diarrhoea like I’ve been having), worse. I think he wants me to see GP about that and see exactly what it is then take it from there. I’m hoping my GP might suggest an upper endoscopy too as well as Flexi...
  9. R

    Misdiagnosis/answers/advice

    Thanks so much everyone. Totally agree with you Eleanor_Rigby. I will see what happens on Monday now when I visit my GP. Although the out of hours doctor did assure me he’d write to them to push for a flex sigmoidoscopy and blood tests as well as urine sample. Hoping my GP surgery FINALLY takes...
  10. R

    Misdiagnosis/answers/advice

    Hey. That’s me out! Right. He did a rectal exam as well as a tummy exam. Their was no blood on examination which is good, nothing to worry about. BUT my rectum and tummy are very tender. Their are STILL 5 internal hemmerhoids so they could be where the blood is coming from. I told him Laura...
  11. R

    Misdiagnosis/answers/advice

    Phoned NHS 24, got an appointment at out of hours at 3:15pm (UK time). Will see how it goes from there.
  12. R

    Misdiagnosis/answers/advice

    Sorry folks for the gross information, but I’ve got awful diorrehea this morning with some blackish bits in it- would this be blood or not? I am not sure what to do now. Feeling pretty cold/feverish too, and again pain in my left side.
  13. R

    Misdiagnosis/answers/advice

    Thanks so much. I really really appreciate all your advice, I am hoping my nurse will give me some answers when I see her in a few weeks. I am just wanting to get better. This has been going on for too long. It’s so frustrating at the age of 23. 😴😐
  14. R

    Misdiagnosis/answers/advice

    My Fecal Calprotectin test was carried out by a hospital, and the results were not understood at all by my GP surgery- they did not have the knowledge/experience to understand the results and I went to 3 different doctors. So that was useless. I will probably now wait to see my IBS nurse on the...
  15. R

    Misdiagnosis/answers/advice

    I will do thanks everyone.
  16. R

    Misdiagnosis/answers/advice

    Thank you very much for your reply. I’ve sent a reply to another user about the above. Been tested for celiac twice and came back negative both times. I am just frustrated now as I think their is something more than just ‘IBS’, I am not saying I want it to be IBD obviously it I just do not feel...
  17. R

    Misdiagnosis/answers/advice

    I’ve had bloods done around 3 months ago- only thing that showed up was low folic acid. Furthermore, my GP practice has tried to carry out a decal calprotectin test but are pretty terrible so didn’t do it properly and have since said they don’t have the facilities to carry it out. I should say...
  18. R

    Misdiagnosis/answers/advice

    Hi everyone. Hopefully I can get some advice, any would be really appreciated as i’m so fed up. I was diagnosed with what they say is IBS in July last year. I had a colonoscopy done in June of this year due to new symptoms- constant blood (dark/maroon/sometimes almost black), in stools, weight...
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