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Really appreciate your support. It is just lovely to know people who understand. Am definitely going to chat to the team. Hugs back xx

From Crohns Disease to a bowel transplant how did I get there? 310312 It has been a bit of a strange few days in my bowel transplant world. Physically not much has changed, I am still managing to be sick after eating and frustratingly my stoma output hasn't yet settled back down to the levels...

That is great to hear and long may they continue with good health. xx

Yes it was the small intestine. I have about 1/2 of my large intestine left and about 40% of my colon intact. I have a ileostomy so spend an awful lot of time emptying bags, it becomes a real pain!! My enteral feed is on for about 12/14 hrs a day at the moment and I am eating very little...

From crohn's to a bowel transplant AB, sorry about the flare up but when I was at my worst they also put me on Aza and I found that it really helped. I was on it probably for about 10 years and although I did have flare ups at times, I didn't have any side effects and by and large it worked...

Hi Diane, very happy for you to be as nosey as you want, ask away!! I was the 11th person to have this transplant at Churchill Hospital in Oxford. The team there are amazing. It was incredibly daunting but I wanted a shot at a new lease of life. I have also been on different types of feeds for...

Hi Dusty, thanks for the lovely words. How are you keeping these days? Please keep in touch would love to know how everything is going with you. Take care

started with crohns 30 years ago. After 20 ops had intestinal failure and expecting lifetime of tpn. eventually after tpn probs I had the transplant at Chuchill Hospital in Oxford. How are you doing? what is your background?

From crohn's to a bowel transplant Thanks AB. So good to hear from you. How are you feeling at the moment? I assume that you had your surgery at Addenbrookes or am I wrong? How does the future look for you at the moment, I hope very positively? Will keep in touch a bit more now, sorry for my...

From Crohns Disease to a bowel transplant how did I get there? - update I ended up back in bowel transplant hq on Monday night. After a brief text exchange with my surgeon he took the decision that I should come back in as I was at risk of dehydration. We get a few days sun and instead of...

Thanks so much for your very kind words. All I want to do is be able to help others. I clearly remember what it was like going in to your teenage years when suddenly diagnosed with a disease that no one wants to talk about. Please wish your son better and if he ever wants to get in touch to chat...

Hi there, thanks for responding. I first got to hear about it via the Mount Sinai Hospital in New York so if you need more details please just shout. In the UK you can only receive an organ from a deceased person as opposed to a living donor. I'm not sure if that is the same in the USA. I was on...

At the moment i am on high dosages of immunosuppresents and anti rejection drugs so they have said that the chances of crohns coming back while on these levels is extremely remote. When my levels reduce which will be in about a year then I may have to go back on Azathioprine. They have said that...

I have had Crohn's for thirty years having been diagnosed at the age of 12. Back then it took 18 months to diagnose and to start with they thought that I was making things up as a way to avoid going to school. After over 20 different operations I found myself, two years ago, with intestinal...