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My sister in law said this site was really helpful, for anyone who might need it... Aaaai.org (I know the name is odd)

Hi there, so sorry to hear about your struggle. Your story made me think of my sister in law with her daughter. The symptoms you described were similar, constipation for one. And she had white patches on her esophagus which we're seen with an upper GI exam. As a baby my niece had very bad reflux...