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I forgot to add that when we had our first hospital stay, he spent several days in icu and they told us he tested positive for C.Diff. He has been on Flagyl for 3 weeks, 1 week left on those meds. When GI Specialists did colonoscopy at the large hospital they did not see any signs of C.Diff...

Just thought I would update everyone on our journey. In the last month Tyson has spent 17 days in the hospital, first visit was 10 days when I took him in he had 103.8 temp and was septic, we were in our small town hospital for 7 days and it wasn't until we were transferred 2 hours away to...

UPDATE ON TYSON! Called my family doctor this morning and they got us right in, he is the doctor that sent us for the upper and lower gi and the surgeon is the one who put us on entocort and got us appointment with specialist in October. Our family doctor was a GODSEND, he got on the phone...

I am confused about something and wonder if someone can answer my question.... As I said earlier, Tyson has been bleeding with bowel movements for 6 weeks, not a lot of stomach pain during these 6 weeks, he has just been one of those kids with stomach aches off and on his whole life. The...

I feel blessed to have found this forum!!! Reading all your posts and advice is such a weight lifter. I felt like we were so in the dark not having seen a specialist yet! We were gone for quite some time today and he informed me he had a hot dog with cheese and lots of kool aid and tonight his...

I just searched ENTOCORT on the forum and as a general rule it says 3 weeks, so I guess the surgeon knew something. We have no specialists here where we live so we have to travel a few hours. They did put us on an emergency list if anyone cancels they will get us in sooner. His blood count was...

Thanks for all the advice and input, this is just so overwhelming at times, I just wish it was me dealing with it and not him! I just keep reminding myself and him that it could be a whole lot worse, of course he doesn't see it that way. The surgeon who did the upper and lower GI said his...

My 16 year old son diagnosed last week with Crohns after having Colonoscopy and biopsies. Been bleeding with bowel movements for 4 weeks. Local doctor put him on (generic) ENTOCORT 9mg daily and referred us on to pediatric specialist which we do not see till Oct. 11th. Wondering how long...