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No emr - they are very clear as to what he has. From day one that has not been in doubt. His scope pics are blood red. The inflammation was horrid looking. What they're differentiating is that he falls within a subset that experiences the traditional symptoms of IBD nomenclature. This was a...

Well, the cylexa was prescribed to him at age 12, he was depressed and suicidal for a jaunt and we were told that the drug also has a pain-relieving effect. He's done well on that I'm fairly sure. Depression runs in my family to boot. I won't do 6-mp again though - he was more sick with it...

Happy - thank you for your response. If I've come off as a raving lunatic on here, forgive. I'm actually as sedate a parent in the face of difficulty that any kid might desire. I'm just looking outside the box of doctors for some commonality, some insight now. As far as researching a plan and...

Laurie here: Muppet - Noah's diagnosis was "textbook" Crohns at age 11. His entire bowel, from large to small was inflamed to the point they couldn't scope past the ileum. He's had the barium test and small bowel tests also. His diagnosis is not the question. How to manage it is. We've been...

Josh here - Tomorrow Noah is having both an endoscopy and colonoscopy done. This scenario is almost a verbatum repeat of last year. Both studies came back normal and the existing treatment plan was supported by the opinion of "see we are taking care of the Crohn's appropriately...must be IBD"...

The Crohn's is not controlled, I don't believe it either. But when you're being told that it might be IBD - what are the means to control it? But there was no significant difference in symptoms once off of 6-mp, except he wasn't picking up every other virus in the world.

muppet - this has been more than one doctor in our experience - is this just within the realm of pediatric gastro because they're trying to get these kids to school? I don't understand it.

Noah was also part of a Psychology based wellness group. But he HATED it. Absolutely hated it. Do I believe in its merits? It's promises? Absolutely. But I am not HIM. He must embrace those aspects of illness. And I don't believe that modern psychology is the only pathway there, either. SO why...

Hi - I'm Laurie - Josh's wife. I'm going to attempt to answer some of your questions here. This forum is proving incredibly helpful - wish I had made time to do more foruming over the years! In the beginning, I was a typical crazy-mom trying to learn it all and do it all. Thankfully, time has...

Muppet - Regarding the counseling and support, we encourage him to go to Crohn's camp, etc to get involved with people who can relate to him but he's not interested. We don't push it too much but I do think it would help if he had someone to call on who could empathize. I appreciated your...

Muppet - I appreciate your openness and perspective. Challenging right now as I am still in Pittsburgh and my wife has been dealing with this herself for the last month and we will be apart until I finish my residency in early October. I tend to trust the GI specialists and we finally found...

Thanks for reading. Here's the short version: Our 14-yo son was diagnosed with Crohn's Disease at age 11. Past two years have been really rough with him missing over 50 days of school each year. Multiple conversations with schools and endless teacher meetings. This year we decided to make a move...