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I joined the forum yesterday, and yours is the first story I've read. Your path to diagnosis and current "stage" in the disease (grappling with meds and looking to the future at the ominous statistics) sounds much like my experience; so no, you aren't the only person living like this. Thanks...

I maintain a fairly strict GF vegan diet, which seems to keep most symptoms at bay. I also avoid fatty and spicy food and popcorn. During a flare (which for me is indicated by pain, fever, weight loss and anemia), I switch to either a low residue or liquified version of the same diet (GF &...