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Well I am in awe of your spirit and ability to deal with this. I am just struggling to see how I can deal with this rather than let it deal with me. Thank you for all your advice and information. i shall speak to the GI and no doubt have more questions to bombard you with!! Thanks again!

That is really helpful. So could you advise me what I should ask the GI next week? And how have you managed to become med-free? Have you had any bad side effects from the meds? Ha I feel so stoopid not knowing anything!!

p.s can you explain fistulas??

Thank you so much for your support. It is an absolute joy to get so much info back so quickly! I am back next week for more info, blood tests, talking about what drug to take. It looks like immunosuppresants. I don't know how severe they think it is. I am really lucky not to have it so that...

Thank you for your quick reply! I am getting a bit panicky as I don't know anything about this. I only have stabbing pains, but they get so bad I can't stand up. But the steroids do a good job and I feel nothing while I am on them. I am worried about the side effects of the medicines. I have...

Hi, I have just had the results of my small bowel scan and am told I have fistulas, about 1 foot of damaged bowel and need to get medication. I only ever have stabbing pains and respond well to predisonal. Is this a bad diagnosis or one that is hopeful? What should I do to help myself...