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Crohn's Disease Forum

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  1. R

    Undiagnosed Club Support Group

    So, the ultrasound was a waste of time. The ultrasonographer asked me what kind of symptoms I'd been having, so I explain and she went on to say 'unfortunately this won't be able to see anything inside the bowel, we are just doing this to rule out other things such as gall stones'. I ask if it...
  2. R

    Do people take IBD seriously?

    Like Danico, everyone I've told just think I have IBS and then proceed to tell me to take Buscopan and try eat better. -_-
  3. R

    Ways to cheer yourself up

    I would love to start reading, but never know which books would interest me. With a movie, you see the trailer, so you know the plot and whether it's up your street or not. Any recommendations? I love horror/murder stories (not in a creepy way! I just like the intensity of that genre). I watch...
  4. R

    Human Genome & LGBT/Crohn's considerations

    Imagine a world full of straight people...how very dull. Not to say they don't add anything to the world, but the same as if it were just gay people...it just wouldn't be a very interesting existence. We need diversity.
  5. R

    Undiagnosed Club Support Group

    Ugh. Yesterday I had a really unsymptomatic day which is unusual, but today it's like twofold and really taking it out on me. I feel so weak, tired and just feel like I'm falling to pieces. The 17th really can't come any quicker for me... @RosannaKate - Yeah, that's exactly what I was thinking...
  6. R

    Undiagnosed Club Support Group

    Thanks Suzi :) Quick rant... I'm getting to inpatient now! I want to be able to start looking for a job and to go out without being constantly aware of my discomfort. I also want a name to put to the problem, it sucks not being able to say what you have to people when you're in pain or rushing...
  7. R

    Unsure what i have

    You have symptoms pretty much identical to mine, but I'm also undiagnosed so I couldn't tell you if it's IBD just yet. I have an ultrasound booked for the 17th and I really hope they find something. Not looking forward to being told I need a colonoscopy if they don't...well if I do have IBD, I...
  8. R

    Undiagnosed Club Support Group

    Thanks happyballerina, I think I needed someone other than my parents to tell me it wasn't a good idea. Everyone pretty much said I shouldn't do it and it took me until before we were about to set off that I realised I couldn't. The fear was mainly of the pain exacerbating during the run or...
  9. R

    Undiagnosed Club Support Group

    Need some quick advice. Supposed to be running a 10K in about an hour and I'm in really bad pain. I tried everything; D tablets, paracetamol, Rennies and had a healthy breakfast. Still in pain... To top it off, I got no sleep last night and I'm fatigued as it is! :( I'd be so disappointed to...
  10. R

    My first post! I'm not diagnosed yet, having trouble talking to my doctor about severity of symptoms

    REALLY angers me when doctors say people are worrying about nothing or that it's anxiety. You can't fake the symptoms we have. What do we have to do? Film ourselves crapping every 5 minutes and rolling around in pain? My doctor was wonderful and he said and I quote 'I am very glad you came in...
  11. R

    Are these my last pair of trainers?

    Hello! Trust me, we're all guilty of Googling and getting ourselves into a panic, but please don't take anything you read as a certainty. Your doctors will give you the facts. 9 times out of 10 when searching online you get the worst possible scenario. Really do hope everything goes well and...
  12. R

    Undiagnosed Club Support Group

    Hey. Got a couple of questions. Don't wanna create a full topic on it, so just thought I'd ask our undiagnosed family! 1) Do any of you suspected IBDers get a dull ache in your kidneys? Noticed this started yesterday on and off. Seriously, I feel like I'm falling apart (/dying), what next?! 2)...
  13. R

    Rectal disease options and cleanliness

    I've used the creams, which work, but it's basically everything that's left over that bothers me. I think due to recurrent fissures there's just a ton of damage. I just wouldn't like to be the one to find out if my GI was open-minded on that or not. Imagine how awkward that would be if he...
  14. R

    Undiagnosed Club Support Group

    Rosanna, it must be so difficult going through all that you are with no support. As for the NHS, are we really that lucky if the doctors are failing to diagnose you and have pretty much given up on you? You're having seizures for gods sake, on top of IBD symtoms - you should be top priority...
  15. R

    What alcohol do people with crohns drink?

    Dry (non-sugary) wines and ciders are okay for me. Never go for anything described as fruity, it's not fruit, it's sugar/fructose. Spirits are okay for me to drink at the time, but the next day I pay for it with D. Lager/beer, just NO. I do think my drinking days are a huge factor in my gut...
  16. R

    Tailbone pain when sitting?

    I too have Pilonidal disease. I was referred to see a specialist about it and basically told me to just manage it by keeping the area clean, shaving the surrounding area and being careful when sitting down. I was hoping he'd operate, it hasn't flared up for a while or caused actual pain, but it...
  17. R

    Undiagnosed Club Support Group

    I see, so it's not as simple as I thought. Had pizza tonight, paying for it big time. How off-topic. xD
  18. R

    Undiagnosed Club Support Group

    I won't quote that because it's a lot of info. But fantastic post! Thank you. I've scanned through it, but I'm going to give it a proper read now.
  19. R

    Undiagnosed Club Support Group

    Yeah I definitely wished I'd asked more questions now. I think I was too eager to get out of there! What I would have liked to have asked is 'from the results what do you expect the diagnosis/findings to be?' Not sure if he'd be able to answer definitively though. So many things come up when I...
  20. R

    Undiagnosed Club Support Group

    My dentist is just constantly on at me for drinking too much tea. It comes with the nationality, deal with it! On another note, is it strange that my doctor never gave me the figures from my blood work? Would have liked to have known what my CRP, PV etc. were. He just said 'high'. Which could...
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