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Hey! I've had some cold/flu symptoms, lots of sneezing and swollen glands, but that all seems to have calmed down. I was so worried that I had an infection and wouldn't be able to have next weeks dose. As for crohns symptoms, they all seem to be under control. Had to go up on the pred for a...

Gah! I really thought you'd get your diagnosis from the pill cam gotumtum. I understand what you mean by the 'I wanted it to be crohn's' - I felt the same. Having a name to put to your symptoms really is a huge relief because you no longer feel like it's all in your head! So IBD is ruled out...

Had both an upper and colon. The upper was like a method of medieval torture. I was wriggling around, gagging - it was awful. All I had was the throat spray which the nurse recommended because it's apparently more effective. Lies. Next time I want full sedation. The colonoscopy wasn't...

Had my first four shots today. Feel strangely well already, but that could be placebo! I won't be avoiding anyone, if I get sick, I get sick. The same as anybody else can. Apparently it's just a little harder to shift. Just take the shot and go on with your life, if you worry about it too much...

Hope you manage to get everything sorted out Madmouse! Didn't know pred could irritate the upper GI. :eek2: Start Humira tomorrow, the loading dose of 4 pens. Had to up my pred from 25mg to 35mg because my symptoms were coming back with a vengeance. All seems to be back under control now!

Another binge drinker here. I can't just 'have a couple'. It can be a problem for me and I'm not sure what the long-term implications are, but I'm sure it's not going to help! I'd love to go tee-total and I do plan to eventually, especially when the time comes for surgery. But I'm 21 and if I...

Couldn't start humira today :( My liver enzymes were triple what they should be...I know why though. Last bloods were on the 2nd and I wasn't expecting them - I'd had a bit to drink the night before. I'm so dumb...

Starting Humira tomorrow, not sure what to expect, but really hope it works. :)

It's gone very quiet in here...where are you all?! :P Starting Humira tomorrow. A little nervous, but it's hopefully the start of me feeling well again!

Hope all goes well gotumtum! There's not need to dwell on anything because this is something that's hopefully going to give you some answers. Well, there's the prep to dwell on, but don't! :) Get my latent TB test results tomorrow - really really hope it's negative so I can begin treatment as...

Aw, that makes me happy haha! I'm glad you've taken something good from my posts, even if most of them are rants. Had my latent TB test done today, hopefully start humira next week, have an upper endo and MRI later in the month to find out the extent of my crohns AND I have a GP appointment...

Nah, I'm not ready to fly this nest just yet! The company is too good. :) Ew, I've just read that short bowel in those that haven't had surgery means more than 50% of the bowel is necrosed? Or not functioning. Idk I don't get it and it sounds scary lol. Gotumtum, are you sure the test...

Yeah I thought that was probably the case. Although he did say he may put me on a low dose of aza alongside humira later on.

Hello! I feel awful just coming back and posting about myself, but I have a few updates that may be helpful to others just getting diagnosed too. So I saw my consultant for the first time yesterday and it seems things are a little more complicated, not bad complicated, just complicated...

I have to brush my teeth after everything I eat otherwise I get some sort of inflammation or problems with my mouth. That was drilled into me from having braces though, it's second nature for me to do it now lol.

I guess you're not. But don't be a stranger. Keep us thoroughly updated! Hope the surgery goes well and you start treatment to beat this. :thumright:

Hey Sorry I haven't posted in a while. My heads allover the place which I'm thinking is due to the prednisolone. I see my GI on the 10th to begin taking azathioprine, so I'm going to bring it up to him then because my anxiety is through the roof. I struggle to even coherently write this post...

Those in the UK (I was reading your posts about PIP) - I got some information from a girl earlier that may be helpful. Although you're unlikely to get PIP, you can fill out a HC1 form for low-income (if that applies to you) which gets you free prescriptions, dental and optician treatment. You...

Has anybody here brought up their issues with anxiety with their GI? And if so, did they do anything or just tell you to speak with your GP? I need some serious help on this front because my anxiety plus pred is sending me crazy, quite literally.

The worst thing is too, I didn't tell her I was gay. Nor did I tell him I was gay. So somebody has obviously taken the liberty of doing so for me... My mother is livid, so I am sure they are going to be educated very soon! I have an information pack that my IBD nurse gave me, so I'll pass that...