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Crohn's Disease Forum

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  1. R

    Undiagnosed Club Support Group

    Thanks Eternal. I think I'm just going through an adjustment period - yesterday was amazing for me because I felt 'normal' and then today, I've had some side effects from the medication. I need to realise that I have a chronic illness and that I can't expect to feel great all of the time. As...
  2. R

    Undiagnosed Club Support Group

    Literally cannot win. With these meds I am now having very large solid BMs (gross, apologies) which are causing bleeding either from tearing or haemorrhoids. Great! I mean it's fantastic that I'm going once a day, but this can't be good either. And with a low-fibre diet there isn't anything I...
  3. R

    Is it weird to feel pleased about having prednisone again?

    It would be the perfect drug if it didn't have side effects! :/ Yeah, I too got up this morning feeling fresh as a daisy, washed the pots and tidied up around the house. All of which I'd usually have to build myself up to do and it would get to midday and I still hadn't done a thing. Haha...
  4. R

    Is it weird to feel pleased about having prednisone again?

    Thanks :). My GI said that pred won't help the condition in the long-term, but can alleviate symptoms in the short-term. It does things like removes edema from around ulceration's and just calms things down in general. I'm on a 10 week taper. I do feel like my body is in overdrive somewhat, my...
  5. R

    Is it weird to feel pleased about having prednisone again?

    Well I just posted on the crohn's and colitis UK forum about how stunned I am that pred is alleviating my symptoms already. I feel fantastic, I'm having normal BMs (first time in years) and I have a glow about me. After being a pale and gaunt for so long, it's a really dramatic difference. So...
  6. R

    Rectal disease options and cleanliness

    I'm probably going to ask if anything can be done to repair that area due to personal embarrassment and not feeling 'normal' and if he questions it or turns weird, I'll just shut my mouth and never mention if again!
  7. R

    Rectal disease options and cleanliness

    Hahaha of course I don't mind. The 'my husband isn't going back there' really gave me the giggles. Oh how lovely this disease is...
  8. R

    Rectal disease options and cleanliness

    Hey Ice. :) Your rambling provided me with a lot of information! I wish I was brave enough to bring sex/sexuality up with my GI. Not sure he'd be as open about it... My main issue is really the appearance of it, it's not very sexually...appealing? I mean I'm sure it would be possible for me to...
  9. R

    Undiagnosed Club Support Group

    Thanks Cat, got some bookmarked on my browser to buy closer to starting aza. Once I've tapered down a little on the pred, I won't be on that many meds I suppose, it's just getting used to it all! I kinda feel like I'm falling to pieces. Messed up bowels, gonna lose what hair I have left, bad...
  10. R

    Undiagnosed Club Support Group

    Thanks, I'll give anything a shot. All these pills! Haha it's only been a day and I'm complaining.
  11. R

    IBS or more?

    From what you've described, I think it definitely could be more than IBS. IBS is a huge grey area of symptoms that could be caused by a few different conditions, including colitis. Anemia is something many people suffering from IBD on this forum have in common, so that could indicate a more...
  12. R

    Undiagnosed Club Support Group

    Thanks Daisy. That is kind of a huge thing for me because my hair already is thinning and I take medication to prevent it, but it seems with most IBD medications, it's unavoidable. If I had a thick head of hair, I probably wouldn't mind so much since it wouldn't be noticeable. Life just gets...
  13. R

    Undiagnosed Club Support Group

    Sorry! Yeah I remember now. There was so many people giving me a tons of information (which I appreciate sooo much!!) that I forgot who it was. Mhm, the being immunosuppressed is what scares me more than anything; with the cancer risk etc. but I have to remember that's just a very small chance...
  14. R

    Undiagnosed Club Support Group

    Gotumtum, what symptoms do you get from magnesium deficiency? Just out of curiosity. Then I can say if I do. It sucks that for some it's so difficult to get diagnosed. I feel lucky in a way to have had obvious symptoms in the areas the colonoscopy can reach. They're still not sure how much of...
  15. R

    Undiagnosed Club Support Group

    I think there's something in the marijuana thing...knowing me I'd end up getting arrested though. Edit: I'm pretty sure I posted this in the wrong tab and in the wrong section of the forum. :ybatty:
  16. R

    Rectal disease options and cleanliness

    Wow, 6 stone 3! Your BMI must've been really low. I'm glad to have a diagnosis now and I already feel better for it. How's your treatment going?
  17. R

    Rectal disease options and cleanliness

    Now I know what's going on I thought I should update this thread a little. I have crohns and it's in the lower end of the small bowel and affects the rectum and anus. I'll be having an MRI specifically in that area to see what's going on. He asked what surgery I'd had done on my anus and I said...
  18. R

    Undiagnosed Club Support Group

    Thank you Madmouse :)
  19. R

    Undiagnosed Club Support Group

    OH! That's alright then nvm. Yeah that would be annoying. And yeah it was a little cringe. I have uber anixety and I was unable to breathe nearly! They were two really stunning American student doctors (female, and I'm not even straight) and their aura just made me nervous. I literally just...
  20. R

    Undiagnosed Club Support Group

    Hmm my new sig won't show. I've even given the undiagnosed group a mention in it. :)
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