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UPDATE: Thank you all for your support and wanted to send an update.. went to dermatologist and he thinks its eczema dry patches on his legs and now he's getting them on his arms, but unsure of a rectangle rash on his calf. he called it a "mystery" don't know how i feel about that. He...

Thank you so much. it's comforting to hear. how old is your son? My doctor wants his level also at 10. I don't know if puberty has anything to do with it but heard that hormones can increase inflammation. Did your son have any skin issues from remicade? My son's weight and height has...

I appreciate your response. Glad your son is doing well. Hopefully dermatologist can figure this out and manage it topically but have to anxiously wait until then :(. so many unknowns with this rash and upcoming blood work. Can't never get comfortable with this disease, something alway pops up :(

Hello.. Has anyone had this test done? My 15 year old son was diagnosed with Crohn's little over a year ago due to no growth, no puberty and constipation. He was started on Remicade infusions every 8 weeks until 2 months ago.. He was doing well in terms of growth and puberty has started but his...

hmmm... that's a possibility.. thank you

UPDATE: my son's remicade level is 2.6 and no antibodies detected. he has been on remicade every 8 weeks at 5mg/kg.. doctor has not contacted us yet.. is it better to increase frequency to 4 weeks or increase dosage to 10mg/kg? He's in high school and I know he won't be happy with every 4 weeks...

Does anyone know how long Promethius Remicade levels take to come back?.. It's been 10 days and we still don't have the results. I called the lab to make sure it was done and they assured me it was

with calprotectin of 1500, how can c-reactive protein be 0.02? still waiting on remicade levels

THank you for your post. Yes, he did mention increasing frequency when levels were 3.9 but he said we can wait since he was asymptomatic (but he was never symptomatic in terms of GI symptoms) and now we waited and obviously there's more inflammation. I just hope he didn't develop antibodies :(.

Thank you. Glad he's doing better on skyrizi :)

@WindingRs . Thank you for your story. I'm kind of in the same situation right now. My son was diagnosed with Crohn's exactly one year ago when he was 14 due to lack of growth and puberty. After colonoscopy and calprotectin level of 4000, he was started on Remicade every 8 weeks. Fast forward 6...

It does sound a lot like my son...thank you for your kind words :) I'm praying for quick remission and quick growth 🙏

Yes, he's scheduled for MRE in early December. He just had his MMR, flu vaccine and Hep B yesterday. Peds said to check hep b titers in 1-2 months to see before having another vaccine. So now we are waiting to see what insurance will cover, Remicade or biosimilar.. I just wished we figured...

Hi Maya.. Thank you for your reply :). How old is your daughter? I had a virtual with the doctor on thursday and because my son stopped growing, he's considering him moderate-severe case even though biopsy stated mild. To get the best result and catch up on growth, he recommends remicade. We...

UPDATE: My son had endoscopy/colonoscopy with biopsies and this was the results: DIAGNOSIS: A) Small intestine, duodenum and bulb, endoscopic biopsy: - Active duodenitis. B) Stomach, endoscopic biopsy: - Chronic active gastritis. See Comment. C) Esophagus, distal, endoscopic biopsy: -...

Thank you for that :) I'm ready to tackle whatever diagnosis he'll get..just hope he'll be ok. He was googling crohns last night and all I think he got sad..it just breaks my heart. I just hope for normal lifestyle for him..he's already been through a lot since birth...he was born with...

Again. Can't thank you enough for your advice..I was so lost this morning but now I feel like I have a plan and will take it day by day..I appreciate you and this forum...thank you all and hoping for the best

Thank you so much...I started the shakes because of his anemia and wanting more nutrients in him. Maybe i need to look into other options...So short term prednisone decreases inflammation should be ok?. My son does not take any NSAIDs...an infection crossed my mind but he would be more...

Thank you all for your replies.. I really appreciate it. All day I've been sitting in front of the computer researching and crying. There is just so much information and different scenarios of treatments helping and not helping... My son LOVES food.. I started incorporating boost/ensure at least...