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My son never felt better while on EEN but he did gain weight and eventually began having solid BMs. I just looked up what his intake was and he was on Modulen at 1.5 cal/ml. He got 1300 ml per day so he had 1950 cal per day. The highest feeding rate we did was 160 ml/hr. In total his feeding...

I was fooled by red Gatorade once.

Taken at dinner time here too.

We've been told every 10 years if in remission and no issues going on. That was by a pediatric GI so maybe a adult GI would tell us something different.

Maybe... When we started to ween off sulfasalazine around here DS ended up with an arthritis flare almost immediately. Originally, when the limb issues started and before we got in to see rheumatology, GI put DS on Pentasa as she said that sometimes it fixes the joint issues. You may have...

Wow, this looks fantastic. Thanks Dusty!!!

I've heard this before. :ybatty::ybatty::ybatty: Our GI is ok with DS taking NSAIDs when needed for his arthritis. We haven't used them very often.

The FODMAP diet has greatly reduced my son's chronic abdominal pain. When he went on it all his inflammatory markers were normal but he was still having lots of pain.

My son was also diagnosed at the age of 10 and did EEN (exclusive enteral nutrition) via a NG tube for 6 weeks shortly after he was diagnosed. He found inserting the tube (size 6 Fr with the guide wire removed prior to insertion) easy and not painful at all. He would insert the tube before...

My son can't do apple or pear juice of any kind. It is likely a problem with the fructose in the apples and pears. If anyone is having problems with tolerating juices I would recommend starting with small amounts, as others have suggested, and try sticking to low FODMAP foods as they are the...

You would think that this would be routine wouldn't you!!! I once went to a talk about Crohn's where the GI giving the presentation said that this was just beginning to become the suggested practice, primarily because more kids were being diagnosed. Honestly I think this is a prime example of...

So sorry to hear you are stuck in the hospital and that C diff has now turned up. :hang:

Suzysu - Sorry I didn't see your post until now. I am confused by FODMAP and soy. I think that for the most part the soy milks are not allowed on the low FODMAP diet. I haven't looked into it very carefully as my son doesn't drink them. I did not notice a change in stool color when starting...

Update: DS is still doing WELL! Still following the diet. I suspect that wheat causes more problems for him than lactose and apples are like dynamite (even cooked). He is going to school regularly and attending tons of after school activities. He is playing baseball for the first time in 3...

Been there! Super frustrating, actually more like devastating. My son had months and months of symptoms (mostly debilitating abdominal pain) but labs (CRP, ESR and fecal calprotectin) all came back normal. We almost tried Elavil (amitriptyline). Ended up trying a probiotic and FODMAP diet...

Front page story today. http://www.vancouversun.com/health/Crohn+disease+hits+kids+with+family+roots+South+Asia/9741766/story.html

Good luck!!! I hope it all goes smoothly.

This happened to DS as well. I like to credit the FODMAP diet but really it was likely just the waning of the disease process all on its own.

I'm sure you have done this but I'll throw it out there anyways. Have you tried having him soak his hands in warm water? I'm thinking of a basin that you could fill and have him sit and soak his hands for a bit. It's not going to solve anything but might bring minor relief. We did this with...

This sounds right. I've been told that the exact diagnosis doesn't really matter because they treat the symptoms regardless. When I talk to regular people I just say he has arthritis because it is too hard to explain the details all the time. DS is on 1 g of sulfasalazine twice a day. We...