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Yes i have been told that you can't go back on remicade, the figure I read somewhere was after 10 weeks without an infusion? I read it is because your immune system will have built up a resistant to it. Why did they decide to stop the remicade infusions the first time around?

yep me too!!

That's great KWalker! :)

And considering the fact that crohn's and alcohol are not a good mix anyway I wouldn't blame you. College life can revolve around alcohol unfortunately. I did a lot of it myself pre 2004!! Maybe joining a society or hobby group might be a good idea? I know they involve time but might be a...

KWalker do you find that when you are stressed your crohn's gets worse? I am a bit older then you are (30!!!). So I am over the college phase now, although I am studying maths part time because I want to be qualified to teach it eventually. But over the years I notice my flares are worse when...

Hi All I came across this link and I thought it was very good. It has recipes for juices based on whats bugging you. Anyway I am gone a bit o.t.t on the juices at the moment - cos trying to fight anemia and build up some energy. It has juices for healthy skin, combating aging and boosting...

I have been worried about this too, but I think it might just get a bit thinner? I don't think peoples hair have fallen out but then again I could be wrong! hope not though:shifty:. And don't worry I was very scared about it, my doctor wanted to try me on it a few years back but then it was so...

:rof::rof::rof: haha ya maybe :)

Hi I just read that you lost 5/6 pounds with intermittant fasting but was that over the 3 weeks? Have you heard of the motivation diet, I know 2 people who are on it and to be honest they lost 5/6 pounds in one week. It is a very healthy diet because it encourages you to eat little and often...

My pentasa doesn't do me that good either but there were a few occasions where i ran out of them (was waiting to get paid!!) and I always found i was worse those days, so that makes me think it is helping some little bit.

my doctor told me yesterday that it seems to work different for everyone and it can be the 4th infusion before people really start to see the effects. the nurse also said this so don't despair yet :). I am seeing an improvement straight away but that is because my problem was constant bleeding...

just back after my first infusion. all went well, no reactions fingers and toes crossed :). i did get blurred vision just before i left so they kept me a little longer but this is the 4th time in the last 2 weeks getting that so i know it not remicade related. i think it is side effect of...

I think for my crohn's my problems started in 2004 when i was in college for teaching, i had teaching practice and the dreaded inspectors coming every so often to grade my teaching, so i think that is where it all started for me. Plus the fact that my mom's family is riddled with IBD, 4 members...

don't know sorry :shifty: but i have my first remicade infusion tomorrow so i was planning to ask them about it so will let you know what they say :) but i think kiny chipped in there

i originally had the disease in the small bowel and illeum and then it moved to the large colon and small bowel is fine. i would reallly love to know how that happens too!! have they looked into candida? i never heard of it before until jandeacs suggested that i might have it. but like i said...

yes i know what you mean too, i am off work at the moment due to the crohns but when i am working it is a struggle to get out the door every morning :( . i think the best advice is to go to your doctor again, especially since the constipation factor is new, maybe they need to add something in...

hi malgrave, that sucks about your son. I know what bleeding all the time is like because it is what i go through on a daily basis, so i can only imagine what it can be like to watch your child go through it. it sounds like they need something to keep the disease under control long term, as...

I was just so surprised that i got in so soon, but they were quiet for monday so jumped at the chance! i think i read that things start to improve an awful lot after about 2 weeks if it works. I am also watching diet at the moment too, and looking at taking other stuff that will try and heal...

Hi All I would be very curious to know how many of you have Crohn's or UC in your families. There is a high history of IBD in my mother's side of the family. My mom has UC, my aunt has Crohn's, my uncle has UC, and another uncle who died from lung cancer had Crohn's. Both my grandparents...

you were having a lot of blood like me weren't you? Does it stop it straight away? I really hope so. The predfoam and steroids both stopped working completely since last weekend. my consultant told me to stop taking the predfoam as it would be causing damage then good since it isn't working...