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  1. lookame

    Blood in his stool this morn

    Lol autocorrect FTW his stool samples were collected around 10 am and his bloods were taken around 2pm both the same day.
  2. lookame

    Blood in his stool this morn

    He has an appointment with a GI tomorrow morning but his pedi said with the elevated result and the history she's guessing the GI will order a colonoscopy and maybe an endoscopy. She also said the sedation rate could have been normal due to when he was tested.
  3. lookame

    Blood in his stool this morn

    His pedi just called and the last result came in, the fecal calproctine...it's elevated at 136. His sedation rate was 8 and occult blood was negative. The occult blood I figured since the day I collected the sample there wasn't any blood. She said there was a blood result which was slightly...
  4. lookame

    Blood in his stool this morn

    I emailed the pedi office requesting a copy of his labs. I sort of expected them to be posted in the portal like mine are (well the drs who have the portal) but I guess they dont.. or didn't for some reason? I also picked up a notebook to track his symptoms. I was scrolling through his visit...
  5. lookame

    Blood in his stool this morn

    I'm not sure what the FC was. The nurse I spoke with said I was already aware the labs were normal but I don't have any numbers or anything to really know what I'm dealing eith. I plan to ask at his appointment about the FC result. I know IBD can be difficult to diagnose as symptoms tend to come...
  6. lookame

    Blood in his stool this morn

    Labs came back normal...is it OK if I'm frustrated about that. Don't get me wrong I'm happy he's fine but I'm frustrated there's not more answers to why he's had blood. It's making me second guess myself.
  7. lookame

    Blood in his stool this morn

    He has an appointment with a GI next tues. Still no news on his labs and he's been normal since so idk. Knowing him he's done showing symptoms until next yr. Well see what the GI wants to do...hoping the labs will come back today.
  8. lookame

    Blood in his stool this morn

    So I want to make sure I cover everything at the referral, what are some things (even if they don't seem like they'd be symptoms) should I make sure to say. He's always been a sweater when he sleeps and he seems to always itch-sometimes there's small red bumps but not always, he wears glasses...
  9. lookame

    Blood in his stool this morn

    I sent his pedi an email this morn abouts the blood and I got a call just now. They are going ahead and referring him to a gastrointestinal doctor even though the results haven't come back yet. With his symptoms and history and my history its seems better to go ahead and refer him out.
  10. lookame

    Blood in his stool this morn

    Well this morn he woke me up and told me he had blood again in his stool. I took a look and sure enough there were a few dime sized spots. He had salad with his dinner last night and it appeared he had trouble digesting it. Poor kiddo :/ I hope the test results come back soon and I hope there's...
  11. lookame

    Blood in his stool this morn

    How long does it usually take for the results to come back? I collected his samples fri morn (some diarrhea some formed no blood) and he got his blood drawn around 2pm friday. I don't think it was a rush order...just wanted to have an idea when to expect a call or results...
  12. lookame

    Feel pressured into getting Colonoscopy, Not sure if I want to do it.

    IBD is a very unpredictable disease. Just because at this moment your symptoms are managed doesn't mean in a month you aren't doubled over and passing large amounts of blood which could have been avoided with a drug like lialda (which is a very mild maintance drug). Like others have said you...
  13. lookame

    Indeterminate IBD and surgery

    Thank you both for replying. I'm not quite sure where to go from here. I'm starting a prednisone taper and at 20 mgs the pain is starting to come back, though I guess I should be great full it's only before I need to go (it's always been like that though). I don't think I've really had my small...
  14. lookame

    Indeterminate IBD and surgery

    So...biopsies are back and this is what we know. 1)pathologically I have crohns (blood and biopsies are crohns) 2)I present as classic UC-so I have the inflammation and ulcers like UC 3)I have yet to find a med that heals my intestine enough to stop passing blood, the med that came the closest...
  15. lookame

    Blood in his stool this morn

    Well his pedi ordered stool samples(occult blood, fecal calproctine, c-diff) and blood work(sedation rate and some others). He seems perfectly fine now so I have a feeling nothing will show but it's still good to get him tested in case he is starting to show...get it nipped in the bud so he...
  16. lookame

    Blood in his stool this morn

    Well he's gone to the bathroom this morning and there wasn't any blood but it also wasn't a healthy stool. as he called it, it was crumbled. I want to say probably more mucous but I can't be sure. he also had an episode last night which he felt like he needed to go but he didn't really have to...
  17. lookame

    Blood in his stool this morn

    I called his pediatrician and let them know. He's going to see her tomorrow. I feel like every yr or every 2 years he has a "hiccup" and exhibits symptoms but every time he gets checked it's nothing and I look like a helicopter parent or something. My husband reminded me though that it's not the...
  18. lookame

    Blood in his stool this morn

    Also 2 or 3 months ago I had c-diff but he's not running a fever and is acting "normal" and only complains of pain when he's in the bathroom Passing diarrhea/stools.
  19. lookame

    Blood in his stool this morn

    History I'd my son's issues A month old bloody diapers-er visit and told can't digest milk age 2-3- sewage like watery diarrhea (no formed stools at all) age 5- gained 1 lb in an entire yr age 6- random often bouts if diarrhea and random episodes of vometting He's had Bloodwork done and it has...
  20. lookame

    When the meds fail

    So...I saw the surgeon today and I'm feeling better about proceeding with surgery. The issue is my biopsies came back- the good is there's no infection the bad is I had both UC and crohns cells in the biopsies. The next step is to get an MRI and check small bowel involvement. If there's no small...
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