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Hi Jessika Sorry to hear you are having these issues :-( I had constant UTIs because of a bladder fistula and I know how draining and distressing it can be. Have you been to a GP or GI about the mucous in your stools and the bump? I really think you should as they are the best people to advise...

Hello Moss Another welcome from me too. I know how frustrating and tiring it can be to be ill for so long. I was wondering if they had ruled out the possibility of a fistula with the MRI? I had one bowel to bladder and experienced pelvic as well as abdominal pain. Sometimes I would test positive...

I'm sorry to hear this. On what basis have they decided you are in remission? They told me I was after three Infliximab infusions because I had a clear colonoscopy. I also had a clear colonoscopy just before my surgery, during which they found inflammation they hadn't been expecting. Trust your...

Hi Beckett. I had only been diagnosed for 2 years when I had my surgery, but it was necessary because of an intestinal fistula that wouldn't heal on meds. The difference it has made to my life is immeasureable. I still have to watch what I eat as fatty, oversweet foods have me running to the...

Yes, I've fallen off the juice wagon too. I don't know why, because it was definitely giving me a real energy boost. Off to the shops today to get back on track.

I wish everyone here release from the chains of disease x

Hi Joan Good to hear from you. Sounds like things have gone well :-) I found it difficult to get comfy in bed for a couple of weeks after too. I kind of didn't expect that with the laparoscopic surgery. I found it most comfy to be propped up on a few pillows. And yes, all my horrible lower back...

Thanks for the update , and I am so sorry to hear that things have not been straightforward :-( Hang in there.

Hey Manda, hope your recovery is going OK. It can take a wee while for the bowel to wake up again post surgery. I had passed gas, but not the real deal five days after surgery so they gave me Movicol to help things along. People who've had a lot of bowel removed sometimes have issues with Short...

I was going to say Happy Anniversary, but it doesn't seem appropriate somehow! I've not had this type of fistula, but - judging from reading about other experiences on the forum - I'm a bit surprised that you weren't given any medication, at least antibiotics to treat it. How is the discomfort...

Hi Corrina A big welcome from me too and we're glad you found us. I'm sorry you have to have surgery, but understand that with stricturing, it is often necessary. If you have a look here you will find other forum members describing their surgery experiences. I wish you all the best with it and...

So good to hear from you Joan. The fuzziness should wear off soon. Rest up and heal well xxx

Thinking of you sweetie. Post when you can x

Hello there. Yes, vent away. And have a good cry to. I think it will help get rid of some of the shock and tension. Many of us know exactly how you feel. For my resection, I only had a day's notice which I'm glad of. Less time to worry. I thought I was fine and quite resigned to the whole thing...

Hello there and a huge welcome to the the forum. Glad you found us. I felt quite sad reading your post and what you have been through, but you manage to sound quite upbeat. You will find many people here in similar situations. There's a subforum specifically for people with fistulas ( see the...

Hello Weezer. I am so sorry to hear about your issues. There are quite a few people on the forum who have had success with Remicade infusions which is something you might want to discuss with your doctors. Also, Sailorluna, who has had fistula issues for some time will probably be along soon and...

Hi Bugman and another warm welcome. So glad you found us. There is a lot of advice and discussion around fistulas and how to handle them on our subforum. But I have to say that you are the first member I have met who has a fistula so far up the GI tract. At least, I am assuming it is a...

That's a while you've not been well, hun. Surgery has done wonders for me and I wish you the same :heart::hug:

Gracifer, sorry what's happened has you feeling so low. Some doctors can be very blunt and I guess they feel that you have to be aware of the worst case scenario. But I think we have to be optimistic. There are members on here who have had years of remission. Look after yourself and maybe you...

Hi Zoey I'm sorry to hear you are having these issues. I'm not a doctor obviously, but I don't think that IBD causes intestinal ulcers. I would be unhappy too if I'd been told I had ulcers but not what the cause was. I think your best bet would be to see if you can see another doctor for a...