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  1. Grumbletum

    Post Surgery question

    Hi there, just bumping your post, but can't offer any advice except to say that the surgery has been focused on the right side of your abdomen which might explain why it looks more swollen. I am glad you are seeing your doctor soon and hope that you will let us know how you get on.
  2. Grumbletum

    My weird brain on crohns

    Hello and a big, warm welcome to the forum. I am not surprised you had to get that off your chest. What a difficult childhood you must have had :-( I know severe Crohn's can have an effect on your mental state and drugs like Pred certainly don't help. Good on you for sorting out what works for...
  3. Grumbletum

    Newy diagnosed at 54 years old, immune sytem?

    Hello there and a big warm welcome to the forum. I am sorry you've found us because you have been diagnosed with Crohn's but glad you have found us as you will get a lot of help and support here. I am a 'late developer' too - diagnosed at 51. You must have been pretty ill to be admitted to...
  4. Grumbletum

    What could this pain be

    Are you still having regular blood tests? If the pain is sevete I would put a call in to your GI or IBD nurse.
  5. Grumbletum

    3 weeks post op

    Yes, it is still quite early so hopefully things will settle down in time. People here recommend a cream called Calmoseptine for the poor, raw bottom. Also sitz baths or even soaking in a nice warm bath, maybe with a little salt in the water should help ease it a little. I'm in the UK and they...
  6. Grumbletum

    3 weeks post op

    Hello there And a very warm welcome to the forum. Glad you found us. I'm also happy to hear that things have gone well with your surgery. It can take a wee while to feel back to your normal self again. Did you have open or laparoscopic surgery? Mine was the latter and even then, it was a good 6...
  7. Grumbletum

    How far would you, or do you travel to see a Doctor?

    :) Hey Ness, it's a small world sometimes. Dr Potts is my GI and Mr Walker did my surgery.
  8. Grumbletum

    Small Bowel Follow Through on the way!!

    Hey there. It was the SBFT that got me my definitive diagnosis of Crohn's. I had had an ultrasound prior to it as my GP thought it might be a gynie issue, but they found thickening in my bowel instead. When I had the SBFT they told me they saw the typical 'cobblestoning' inflammation pattern of...
  9. Grumbletum

    How far would you, or do you travel to see a Doctor?

    No choice but to travel when you live on a remote island. The first GI I was assigned to used to fly over here from Stornoway. Then after my first hospital stay, I was assigned to a GI there and had to fly over my Infliximab infusions. 1.5 hours on the plane and an overnight stay in Inverness. I...
  10. Grumbletum

    How far would you, or do you travel to see a Doctor?

    No choice but to travel when you live on a remote island. The first GI I was assigned to used to fly over here from Stornoway. Then after my first hospital stay, I was assigned to a GI there and had to fly over my Infliximab infusions. 1.5 hours on the plane and an overnight stay in Inverness. I...
  11. Grumbletum

    Uk juicer recommendation

    I have a Jack LaLanne which I was very lucky to get second hand from a friend for £10. It can juice just about anything!
  12. Grumbletum

    Not feeling well tonight

    Hi Dave. Yes, I reckon they are all connected. Before remission, I often found that a period of feeling particularly tired was followed by the tummy and other issues. If it persists, it might be worth getting a few tests done?
  13. Grumbletum

    Update

    That's good news on the bowel front, Josephine. I hope they can get the joint pain sorted.
  14. Grumbletum

    Crohn's-safe dessert recommendations?

    That's quite a tough one. Would your friend have any idea about what her friend can and can't tolerate? Lots of icing does me in too and I am in remission! It might be an idea to have maybe a couple of gluten free items on offer? Quite a few Crohnies are intolerant.
  15. Grumbletum

    Dizziness and light-headedness

    Hi there. It could be related to your meds. Have you had your blood pressure tested? Low pressure can cause dizziness and nausea. I had low blood pressure around the time I was tapering of Prednisolone and had started on Azathioprine.
  16. Grumbletum

    Next Steps...

    Hey, Harv, sorry too to hear that you are needing another surgery. I only had a day's notice for my resection which was good in some ways - less time to worry about it. I thought I was fine about it until they wheeled me down to the theatre waiting area where I promptly burst into tears and was...
  17. Grumbletum

    My story so far

    Sounds like a sensible approach to dealing with your pain, Dan. Keeping a diary of your pain and food intake and noting reactions can help you feel a bit more in control and the information could be useful for your docs too. If you have a smart phone, there are some good free apps for keeping a...
  18. Grumbletum

    Afidz is expecting....a dog! Help with name!

    Hmm. I like Hercules for a big strong dog. Or Socrates :-)
  19. Grumbletum

    My story so far

    Hi Dan and a big warm welcome to the forum. I'm so sorry to hear about your Crohn's diagnosis. But I am glad you found the forum and hopefully we can help see you through this worrying time. It can take a wee while to get on the right treatment regime. It sounds like your doctor is taking a...
  20. Grumbletum

    Clear colonoscopy so now what??

    I really feel for you :-( Hopefully your GI will go for an imaging test of some sort. I went into hospital tests for an intestinal fistula that my IBD nurse and I suspected had opened up again. I had a clear colonoscopy but the MRI showed up the fistula, so they decided surgery was my best...
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