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Crohn's Disease Forum

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  1. crazycanuck

    Things people say...

    People are rude and well people are also stupid. I do feel for you. For many many years I've heard from coaches that I need to gain weight. Only now that I stop playing and go on Remicade do I actually gain said weight.
  2. crazycanuck

    Need advice

    It scared the crap out of my mom with some of the side effects but after I started and the incredible improvement I've had on the drug quickly eliminated all worrries. I gained nearly 15 lbs in my first week (granted that was largely due to Mexico trip) and since then another 15 lbs and am now...
  3. crazycanuck

    Night sweats??

    Never had either expereince with me. I'd advise just to call your doctor and find out for sure if this Remicade related. Hope he's okay and it keeps working great for him.
  4. crazycanuck

    Remicade: How long until remission?

    Litterally days for me. I had my first infusion and then 2 hours later was eating tacos which I couldn't eat at all before. 6 Days after my first infusion I went on an all-inclusive trip to Mexico and spent the entire week eating a ton and wasn't sick once with bathroom trips only twice daily...
  5. crazycanuck

    What helps you through tough times? What are u thankful for?

    That my Canucks are in the Stanley Cup Finals :) :) :) Well I love sports, thank god I have a good family, my girlfriend (think she might read this???), and knowing that as much as I hate colonscopies and the prep work before them that I can eat all the Mcdonalds I want just before I start it.
  6. crazycanuck

    Hello

    Hey there welcome to the forums. Was diagnosed at age 16 and have to say having somebody to talk to about this would have been great when I was starting out but I just had no idea about this place. Hope you find it a great place to learn about Crohn's and best of luck with feeling better!
  7. crazycanuck

    My Story by Sprout

    Well your off to a fine start if you have Mr. Mikeyarmo posting in Your Story thread.... never posted in mine. Jeesh. I'm just kidding but incase you weren't aware he was involved with starting these forums. Anyway you've found the right place for what your describing. Nobody here thinks, "Oh...
  8. crazycanuck

    Newly Diagnosed, then again....

    I'm sorry for you troubles will and while I didn't have that problem I know I've read tons of people on here who have. I remember one woman a long while back was getting conflicting reports of gall bladder vs Crohns... Best of luck and try for a second opinon as it can't hurt.
  9. crazycanuck

    I'm Giving the Forums Another Go...

    Hi Crohn's Forum Members, I'm a fairly long time member however unfortunately a while back I became really sick when I was starting to post a lot on here and for whatever reason I wasn't doing so well, mentally, with reading about everyone's stories and trying to be of any kind of...
  10. crazycanuck

    Where to get Remicade?

    Do you have a Safeway near you? Now I live near Vancouver so I have no idea what the difference is between USA and Canada however it costs me $1000 per 100mg so $4000 per treatment for me (thank god covered by insurance). Up here the best place is Safeway because of Air Miles! I can collect...
  11. crazycanuck

    Imuran starting 10th Jan / Side effects of Acute Myloid Leukemia

    Yeah I can imagine the fear of that but please keep in mind these are ultra rare side effects and Ive been on these boards a while now and not once read anyone with one of those side effects due to imuran. As astra said allergic reactions are possible as are imune suppresion beyond healthy...
  12. crazycanuck

    What's your theory on how you got Crohn's Disease?

    I agree with the both of you. There has to be links to cleanliness and the over protective measures countries like canada, the us, britian.... take to prevent illness. Howecer I very much agree with starrgirl that we have no way of knowing how many cases of crohns there were even 100 years ago...
  13. crazycanuck

    Crohn's rectal bleeding even with steroids

    Yeah I give them a call. Steroids arent always the answer either though so keep that in mind. What other drugs are you on or is it just steroids?
  14. crazycanuck

    Doctor response time?

    I get calls back same day. No matter where my doc is. Shes called me on vacation from san fran once (im in vancouver). As far as Im concerned anything more than 24 hours is unacceptable.
  15. crazycanuck

    Weight?

    I agree with what rebecca said way up there in that it all depends where the disease is. In april (2010) I lost about 15 to 20 lbs in 2 weeks and that was a combo of not eating and diarrhea when I did. Ive gained that weight back now since october and remicade and actually up 4 pounds. Im 5'10...
  16. crazycanuck

    Just depressed over my son having this.

    Hey there Im glad surgery seems to have gone well an shes home recovering. Best of luck!
  17. crazycanuck

    Yee haw

    Hey there welcome to the forums and some amazing positiveness. I do hope you get better quick and back to that stress free life. Best of luck!
  18. crazycanuck

    All new

    Hahaha liquid gold is right creepy. Welcome to the forums and I too am on infliximab which is also known as remicade. Working wonders for crohns symptoms now jist figuring out if back pain is related.
  19. crazycanuck

    Recently diagnosed at 44

    Hey there sorry for the Dx but great that you can start to work on it. I third (?) the diet suggestion start simple and work your way up. Best of luck and welcome to the forums!
  20. crazycanuck

    Question: Arthritis

    Thanks claire's mom and yeah I'll be having it checked out soon Im hoping friday. Hard with work getting to the clinic and not a chance Im waiting through hospital emerg haha Free healthcare has its benefits and drawbacks and 4+ hour waits is definately one. GI is off till the 4th too so friday...
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