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I think doctors are currently advised to use combo therapy. I got some research reports from mine and my conclusion is that though combo helps to induce remission and can also prevent antibody development, it's unclear whether it's necessary to maintain it and for how long the combo should be...

momoftwo - had to go dig up his old results since it's been awhile, looks like his albumin was 2.5 g/dL and standard range is 3.5-5.1, total protein was 5.4 vs 6.3-8.6.... looks like it took a few months to increase, didn't hit normal til 8 or 9 months in. Curious what happened to mreyn, no...

My son did it too, it was interesting to see, need to spend some time looking through it more, but also great to help with research.

Last month, we postponed my son's Humira shot a couple days to finish abx for bronchitis. So, yes, unless he's on the 5-day zpack instead of usual 10 day course. But ask your GI what they want to do

Good luck! hope it works great

My son didn't have a seton, but did do 8 weeks of IV antibiotics that healed his (2nd) fistula - flagyl and ciprofloxacin. Then, he started remicade. His first fistula was laid bare by surgery and was part of his dx.

I wouldn't postpone the infusion - they generally only say to postpone if they are on a systemic antibiotic, but worth following up with the GI/pediatrician. Could soak the toe in some hydrogen peroxide and apply neosporin. The fatigue and headache could be him needing the infusion is all, or a...

ditto. my son has had a couple, one to see a fistula and after it healed. MRI/E can see the small bowel better. The contrast is hard to get down, he did less than half and it was ok. There's no radiation exposure. And safer than the capsule, which can get stuck and is hard to swallow.

Thought I'd update: a couple years ago I discovered our local recycling center (EDCO) takes styrofoam, so I stop by there a few times a year. They also take the sharps containers.

We didn't do the same combo, but did drop 6mp after a year in combo with Humira. The research is mixed regarding whether to do combo - which seems to help prevent antibodies and encourage remission, but how long is combo needed after remission achieved? And weighing longterm side effect risks

same, my son had no pain, no diarrhea, no blood, no typically described symptoms. He had anemia, fatigue, growth failure, and fistula with abscess - the abscess is what led to tests and dx. It can take awhile to find what works. Dig up some of the research for top-down approach for kids near...

4 year anniversary of my son on Humira. Yay! (*bump *knockwood)

My son had remicade-induced psoriasis and occasional rash outbreaks. If he's developing antibodies, seems like it would make sense to switch off remicade to something else rather than postpone treatment. Maybe a lukewarm colloidal oatmeal bath would calm his skin? If the antihistamines aren't...

We haven't had a reason to test antibodies yet, but we have started monitoring the blood level of Humira in his system. Insurance might cover that and as a first check anyway.

I hope so! My son is still 2 years delayed but maintaining that rate while in remission. Endocrinologist thinks he'll catch up in the end. Worth a visit to an endocrinologist, if you haven't already, to check on bone age.

interesting article on biosimilars and cost http://www.businessinsider.com/fda-panel-recommends-remicade-biosimilar-2016-2

huh, my son had the initial TB test but doesn't do an annual one with Humira (almost 4 years now). I'll ask his GI next appt.

I enjoy seeing professional athletes raise awareness of IBD and be a role model for kids. Like Diekman's Gut It Out shirts earlier this year. Just saw this article about NBA Laker Larry Nance Jr...

It will restart eventually, but first he has to have weight gain. Not everyone has catch up growth. My son checks in with the endocrinologist once/year with a hand xray for bone age. He's consistently 2 years delayed, but growing at a regular rate again. He'll just catch up at 18 or 20...

Centrum multivitamin is comprehensive. there's a chewable, but the ctirus flavor might aggravate her too. There are some great protein bars now, but check label for not too much fiber for IBD. My son was stubbornly low on protein until we added 6mp to his Humira for a year.