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Crohn's Disease Forum

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  1. DJW

    Post surgery advice

    It was a while ago. It was about a month. If you find you can't drink anything you need to be seen right away. Hope you feel better soon.
  2. DJW

    Post surgery advice

    Are you able to take in liqid nutrition? It may just take a bit of time. I've encountered that before.
  3. DJW

    Grooming - or lack of it

    I certainly could be depression.
  4. DJW

    Start remicade tomorrow for the first time.

    Hi, The nurse told me to drink lots of fluids. Eating and drinking during the infusion is fine. I'm in the clinic for 2.5 hours. I bring my iPod or a book. Usually I take a nap while listening to music. Remicade has been s game changer for me. Hope all goes well.
  5. DJW

    I'm so scared

    Hi, I have about about 1.5 m left. I had a 20 year remission from severe fistulizing Crohn's. Don't give up. Talk to the doctor about the depression. Sending you my support.
  6. DJW

    Extreme Fatigue Support Group

    I hope you get some answers.
  7. DJW

    Post-colonoscopy pain and nausea?

    Hi, Did they pump a lot of air into you during the procedure? That might be one cause. Hope you feel better soon.
  8. DJW

    Extreme Fatigue Support Group

    I've just completed a sleep study. I have sleep apnea. Last night was the first with a CPAP machine. A night full of dreams (REM sleep) and no am headache. This could be a game changer for me.
  9. DJW

    Undiagnosed Crohn's or colitis

    Hi and welcome, Lower right quadrant pain was all I had for several years. That slowly changed when I was 11/12 years old and I was fully investigated. Just to clarify, colitis is just inflammation in the colon. Ulcerative colitis is limited to the colon only and is different from Crohn's...
  10. DJW

    Ileostomy surgery

    Hi, My apologies. I just came across your post. I've had my ileostomy for almost 30 years. It actually gave me my life back.
  11. DJW

    Remicade and Sepsis

    Hi, I've never heard or read anything about sepsis. I'd suggest calling the pharmacist today to get an expert's opinion.
  12. DJW

    Fissure - How long for cream to work?

    It's been a while since I had one; they are awful. Sorry, I don't remember details. Our Trillium Drug Plan in Ontario is a wonderful safty net for us. Sending you my support.
  13. DJW

    Have to get this off my chest

    Hi A ja, I've had CD for 38 yearsish. It not uncommon to have times like this, physically and psychologically. Keep your doctor in the loop with what's going on. Talking it out is important. Sending you my support.
  14. DJW

    Bag blowout

    I avoid using any sort of skin prep unless my skin is having problems.
  15. DJW

    Poll: How long have you been on Remicade?

    About 2.5 years. Very pleased.
  16. DJW

    Bag blowout

    Vent away. It definately takes time to learn all the ins and outs of an ostomy. I used to use paste; did for years. I changed to the eakin seals and love them. I may have 1 or 2 leaks a year. Hang in there, it gets easier.
  17. DJW

    Has anyone had surgery on their rectum/anal canal (strictures)?

    Hi, I've not had this so I don't know what options are available. Dialation might be possible. Do you have an appointment booked?
  18. DJW

    Combination Therapy - Remicade and Imuran

    Hi, I'm on both and not had any issues. I don't have a link to provide but I have read the risk of cancer goes from 2 in 10,000 to 6 in 10,000
  19. DJW

    Ileostomy

    Hi and welcome. Mine was permanent from day one. Would a second opinion be an option?
  20. DJW

    Strange question

    Do you mean your smell is off or you smell something strange? Smell is a pretty powerful sense. I still get a bit of a panic attack as soon as the hospital smell hits me when i get off the elevator.
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