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Thanks so much! This really makes me feel better while we wait because we had her ear checked and it was fine so it had me wondering.

Thanks again everyone! I got her an appointment with her ENT this morning and we’ll just have to wait until the FC comes in next week. Hoping and praying she’s still in remission!

That makes me feel better, thanks! I know CRP isn’t strictly gut related but I always worry anyways when it spikes (even after all these years and two kids and a husband with Crohn’s). Is 50 or below still the “normal” level for FC?

Wow! I guess I need to get her back to the ENT ASAP and see what they say!

Thanks so much for the input! How did you end up finding the right treatment for his ear? We’ve been going through this for almost 6 months and her poor eardrum finally ruptured. She’s been to her PCP, an ENT, even her GI looked at it!

Thanks for replying! She had Pfizer as well but the labs were done two days after the shot. She also has a ruptured eardrum so the GI thinks those MIGHT have something to do with the CRP but is waiting to get the FC test back. I guess it’s a waiting game since DD feels perfectly fine and all...

Does anyone know if the Covid vaccine causes elevated CRP levels? DD just had her second dose a few days ago and had labs today and her CRP has spiked to 31! We’re doing a fecal calprotectin test and I have a call into the doctor but just wondering if anyone has experience with this. Thanks in...

Thanks for your reply! I spoke with his GI and he said because of the tethering to the sigmoid colon there is a greater risk of perforation. He said DS is on the highest dose of Remicade and there is still active inflammation so he may want to switch him to Stelara BUT...since we don’t have a...

DD is doing ok and we’re most likely going to try the balloon dilation first. Just waiting to hear if they want her to have an MRE first to get a better look at the length of the structure, etc. Fingers crossed!

DS just had an MRE yesterday to see if his fistula is gone and he can space his Remicade infusions from every 4 weeks back to every 8 weeks like they had been (he had an abscess and fistula in January and had a drain for two months). The results can’t definitively say it’s gone and showed...

Thanks for the info! She has had some mild nausea on and off for the last week or so and when she goes to the bathroom it has been “loose” and “urgent”. Doc today didn’t seem like it was an emergency so I guess we’ll wait until biopsies are back and see what the next steps are. The more I look...

Hi all, my daughter just had a colonoscopy and she has a stricture where they did her resection 3-1/2 years ago. They took biopsies but doc said it looks like scar tissue. She showed me the pictures and it looks REALLY narrow, she didn’t even want to push the scope through but she was able to...

My son (19 yrs old) has been in remission since he started Remicade right after being diagnosed almost 5 years ago. He started college last fall and lives in his dorm (private) about 1 hour away. In late January, he developed a fistula and an abscess. They were able to place a drain in the...

They hadn’t diagnosed him yet and he was really inflamed. He also didn’t go to the bathroom much even with the prep the night before. They think the combination of how inflamed he was and how much they had to flush to get through the colon a tiny perforation happened but can’t be sure.

Quick backstory for those who haven’t read my previous post-My 19 year old son was diagnosed with Crohn’s almost 5 years ago and has been on 5mg of Remicade every 8 weeks since then with no issues and in remission. He was recently hospitalized for a week because he has an abscess and a fistula...

Thank you all so much for the input. He’s home now with his drain and we go back next week to see if he can have it taken out. They told us he definitely has a fistula so they left the drain in the abscess in hopes that it would help the oral antibiotic get to it and shrink/heal it. Then they...

No scope since 8/2014. He just has his infusions every 8 weeks and labs every time he has an infusion. He’s has his Remicade levels checked twice before this as well. Also sees the doc every 6 months. Doc was going to scope him or do MRE in August 2019 at the 5 year mark. No pill cam...I guess...

His Remicade level was 17.4 and that’s at about 4-5 weeks post infusion and no antibodies so they say the it’s not a matter of going up in dose or frequency (he goes every 8 weeks). They now want to do another colonoscopy in a few weeks and check some tissue samples and test for CMV. I’m freaked...

My 19 year old son was diagnosed with Crohn’s almost 5 years ago and immediately started on Remicade. He’s 5 mg/kg every 8 weeks and it’s been working wonderfully. Last week he called me from college to say he’d been feeling really sick for two days but he thought it was the flu. I took him to...

I called the on call GI and had a nice talk with him. DS hasn't been taking any supplements but has been weight training with his friend who does MMA. He says it's possible that it may be muscle breakdown because he's a thin kid who has never trained and is now doing an extensive workout. I also...