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DS (15 yr old) never had ANY pimples, acne, etc. until he started Prednisone. He was started on 60 mg and immediately started getting BAD acne on his face, chest, and back. By bad I mean inflammatory/cystic acne. I'm thinking it's a combo of the Prednisone, finally getting normal growth and...

We just got home from DS Remicade infusion. Everything went great (Thank God) but we got a call on the way home about his labs. His labs look good except his electrolytes/chemistry. The nurse asked if DS has been having lots of diarrhea. I told her not at all and she asked if his labs were...

We filled out the paperwork but I'm still limited. It's like a black hole between 13-18 because I can't access it and neither can he (electronically that is)! I spoke to two different people at the help desk, the nurse at GI office and then a supervisor at the help desk. I even asked how in the...

Thanks for all the info! As far as the portal, I am signed up but because he's over 13 I'm a healthcare proxy and so I don't have access to everything. The silly thing is, he doesn't have access to anything until he's 18!!! Also, of the tests I can see the doctor has to release them after he's...

I know certain GI's have different ways of doing things but I'm wondering if anyone here uses an "adult" GI? DS is 15 so it's only a few more years but I just REALLY dislike his current ped GI. As if perforating his intestine during his colonoscopy and his condescending attitude when DS was sick...

DS hasn't had a bowel movement in two days. Lately he's been going twice daily. We had been driving for 13 hours to visit family and he went two days without going (probably from sitting in the car for so long) but finally was able to go. Now that we've been here for two days, he hasn't gone...

DS was on 60 mg of Prednisone for a month (for severe stricture) and just got his third dose of Remicade about 10 days ago. He went down to 50 mg daily last weekend and has been doing fine (after some chest pain and high BP that resolved thank goodness). But for the last three days, he's...

He's doing pretty good....he's having some stomach pain now. BP back to normal and chest pain gone! :)

Thanks everyone! I called his GI and explained what was going on with his ped. He said high blood pressure could be too much fluid or may be from the Prednisone he's taking (just started to taper today to 50 mg). I'm definitely going to call my ped's office on Monday and get him in for a...

This was his third dose but GI said the high BP wouldn't be considered a side effect because it happened after the infusion.

DS had a spike in his BP after his Remicade infusion two days ago (systolic went up to 152). Last night, he said he was having chest pain that felt like gas but he couldn't burp. I took his BP and it was 133/70 but he was organizing his room (moving books, vacuuming, etc.). I decided I'd take...

We just got back from DS third Remicade infusion and we had a bit of a scare. At the end of the infusion, when they were flushing him with saline...his BP went pretty high! Before we started it was 109/60 something. Then it went up a little to 120/60 something and then at the end it was...

Yeah that's what I thought too but the website says it goes towards co-insurance and deductibles.

My husband's employer has new insurance plans and we need to sign up for one in the next two weeks. I've narrowed it down to 2 and could really use advice. I've NEVER had a plan with a deductible before so it's very scary because we live pretty much paycheck to paycheck. Plan one is $160 more...

DS started getting headaches a few days ago. He's on his computer constantly coding programs, doing homework and playing games with friends. Maybe eye strain from looking at the screen too much? He hasn't missed any school because of the headaches but I was just wondering if they can be from...

My 15-year-old DS Grayson has been on 60 mg of Prednisone for the last two weeks. We have an appointment to get a taper schedule in a few days but in the meantime, I have a few questions: 1) Anybody notice acne as a side effect? DS was so lucky to have not a single zit ever and a few days...

Grayson has been in the hospital for three days now with a stricture. He got his second Remicade infusion yesterday and has been getting Prednisone too. He hasn't eaten or had anything to drink in three days (but they're not talking TPN yet, thank God). The GI says he's not as distended and...

Grayson had his first Remicade infusion almost two weeks ago and it went great! He was scheduled to have his next infusion in two days but this morning everything changed. He woke up around 5:30 AM in pain so I paged his GI and was told to go to the hospital lab for labs and an xray. As we were...

It went great!! No reaction this time so I'm hopeful he'll do well next time too. I have to say, I'm cautiously optimistic. Last night was the first night in a long time that he didn't have a low-grade fever and I asked how he's feeling and he said he has less cramping!!! Hoping and praying...

Tomorrow is the day..DS has his first Remicade infusion! I go back and forth between excitement and despair. Thankfully it's about 70% excitement LOL! Please send positive thoughts/vibes/prayers our way. And thanks, as always, for being here!