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Well today we had our "first" Crohn's visit with the GI. It was really just a formality since we've pretty much heard it all in the last four weeks and two hospital stays. We've decided to have DS start Remicade because we want a med that will work quickly for the inflammation and the...

I've noticed that DS has been running low-grade fevers (99.4 or lower) for some time. I know that it's probably from the abscess and/or fistula but even before his dx (and subsequent perforation and surgery...UGH) he had been running slightly high. I also know that can be part of the Crohn's...

Thanks so much for the reply Grumbletum (love the name)! My sister was diagnosed with Crohn's almost 20 years ago and had a bowel resection almost right away. She's been in remission since then so when we got the diagnosis I knew what we might be in for but we were pretty optimistic. It's a lot...

Thanks so much for the reply Grumbletum (love the name)! My sister was diagnosed with Crohn's almost 20 years ago and had a bowel resection almost right away. She's been in remission since then so when we got the diagnosis I knew what we might be in for but we were pretty optimistic. It's a lot...

My 15 year old son was diagnosed with Crohn's about three weeks ago. His colon was perforated during colonoscopy and he had surgery a few hours later to repair. They were able to do the repair laparoscopically and he had IV antibiotics and a drain. He went home a week later without drain or...

Thanks for the info on allergies and the awesome explanation of fistulas. As far as draining his abscess, they're trying to use antibiotics until he can get Remicade because it's not accessible for IR so it would mean another surgery to clean and drain. Hopefully the Remicade will do the job...I...

GI just called with the MRE results. Grayson's abscess is stable (didn't grow or shrink) and he has a fistula. I know it's a connection of sorts because they has told us last week he may have one and explained it a little then. GI said Remicade could fix it and antibiotics should keep the...

Hi all...first things first. THANK YOU (as always) for all your replies/answers/suggestions. I don't know what I'd do without this support! Grayson went for his MRE yesterday. He was only able to drink one of the three bottles of barium because he felt so bloated. We had his GI paged and his...

Forgot to ask...any of your kids have abscesses, fistulas or strictures when MRE was done? DS is on oral antibiotics for an abscess right now and a CT in July showed narrowing near the ileum? GI knows about this but didn't seem to know much about the MRE so I didn't ask him....and don't know who...

Hi again everyone! Grayson goes in for his MRE tomorrow and I was wondering if anyone here has had experience with it? After his perforation (and subsequent surgery) following his colonoscopy, then the abscess he's taking antibiotics for....I wanted to give him and his poor stomach a break...

I don't know where you are but my son is in the hospital right now and I was just reading through the Child Life Services info and came across info on "Code Help". It's a number you can dial in the hospital when parents, patients or any family member feels like they're not getting adequate...

My 15 year-old son, Grayson, was diagnosed with Crohn's a few weeks ago. During the colonoscopy, his GI perforated his bowel. He had to have emergency surgery to repair the hole. He stayed in the hospital on IV antibiotics for a week. Yesterday after being home for almost 2 weeks, he had a...

My 15 year-old son was diagnosed with Crohn's a few weeks ago. They perforated his bowel during colonoscopy and he needed surgery to repair (I've posted a few times here-still getting used to things). We haven't had the initial visit with his GI yet to discuss symptoms, options, meds, etc...

Thank you all again! I went back and read my original post and realized I phrased it wrong (regarding meds). I know meds don't cause immunity to go down, I meant to ask if they checked antibodies BEFORE giving meds for Crohn's because the meds they prescribe lower the immune system. I'm...

Hi all! I posted yesterday about my son being diagnosed after a colonoscopy/endoscopy where his ped GI perforated his bowel. I first want to thank everyone for the warm welcome and wonderful advice. I'm going to call my pediatrician tomorrow and ask her for another name. Now onto my next...

Hi everyone! I'm Jessica and my husband and I have three kids. I have a sister who was diagnosed with Crohn's 20 years ago (had a re-section then but is not on any daily meds and is pretty much in remission) and my husband's father has Crohn's as well (no surgeries but takes meds). Our 14...