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Crohn's Disease Forum

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    Undiagnosed Club Support Group

    xjill - i still hang around and i'm diagnosed. lol cat- i understand about the kids. we waited 8 years to have ours. and even when i got pregnant i was still kind of freaked out about it. all i'll say is that it's different when you have your own. i was never a kid person, but i do like my...
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    Questions

    my dx route was a little odd though, because before the fistula broke thru, i was seeing a different kinds of drs, because they all thought either crohn's or an immune response to the anitbiotics. i went to an ENT, an allergist, an oral medicine dr and a GI. when i went to my GI here the first...
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    Undiagnosed Club Support Group

    oh carrie. i feel you dog. my period always made my guts messed up before crohn's. hate it for you. hopefully it will be a short one!
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    Questions

    i have a 3 year old. he's a little sweetheart. :) mine really,i guess probably started about a year ago, but my only "symptoms" were tinnitus and really bad acne. then this past april i got a strep-like illness and was put on antibiotics. about 5 days into the antibiotics my whole mouth flared...
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    What was your Crohn's (or Colitis) Misdiagnosed as?

    i can't believe how many people were told it's all in your head. yeah, because people fake diarrhea. if i was going to fake something, it wouldn't be that.
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    Treating Inflammatory Bowel Disease With A Probiotic

    i used to take acidophilus everyday, pre-crohn's. then i flared. now i can even do 2 spoonfulls of yogurt. i was on high doses for months. everything just got worse. way past time for a herxheimer effect.
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    What was your Crohn's (or Colitis) Misdiagnosed as?

    i had about 6 different types of doctors tell me probably crohn's. mine was the opposite. i was the one in denial!
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    Treating Inflammatory Bowel Disease With A Probiotic

    funny. probiotics make me worse. my body doesn't like foreign bacteria. it actually makes me more inflamed.
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    Undiagnosed Club Support Group

    sunshine - you poor thing. i am so sorry. you just can't catch a break can you???:stinks: remicade is going well. had my 2nd infusion on tuesday. went fine. i'm still doing well. getting less and less stool and discharge coming thru the fistula hole, so i'm assuming it's healing. just taking...
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    Fistula fart? Haha

    mine's in my labia right next to my vagina. most of my farts go thru there first, sadly. like someone said above, feels like i'm farting underwater. mine don't smell, but man, that's some awful sound.
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    Blood Discharge

    i don't know about what's normal or not, but i've had blood come out of mine. i think when it's irritated? had a couple of instances of quite a bit of blood, but most of the time just a little bit. it will last for a half day or so, then be fine for a while. i haven't had any for the last 3...
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    Floaters in my eye!

    mine's kind of like this. i only really notice it when i'm outside looking at the sky. very faint and kaleidoscope-y. although mine started when i got pregnant and has toned down but never gone away. i always attributed mine to hormones. maybe not?
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    Questions

    you're very welcome. benadryl is an antihistamine. the drowsy kind. i googled your money. size wise, maybe like your 10cents? maybe a water bottle cap? yes, hubby is very supportive. especially with the lack of you know what. it took him a while though, to understand. at first he wasn't the...
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    Flu vaccine and remicade

    i've read in places that people with autoimmune diseases have overactive systems, and that when on immune suppressants it makes your system normal, instead of suppressed. on a related side note, i saw something on the news last night about a study in norway on chronic fatigue syndrome. people...
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    Questions

    tla- glad i could help. lol. let's see. a nickel. it might be closer in size to a sterling pence. maybe ever so slightly bigger. mine's in my labia though. the inside part. i don't know how that affects healing time. i take tylenol before i go. my dr doesn't have me on iv benadryl, but he said...
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    Undiagnosed Club Support Group

    ruby- i don't have diarrhea either. there are people here who have constipation instead of diarrhea. my inflammation is only in my rectal/perianal area, ergo, i don't really have any upper abdominal pain or diarrhea. mucus and blood are common in crohns, sorry to say. although it could be...
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    Questions

    i had my 2nd infusion yesterday. went well. still feeling better. fistula hole still there. i did notice a couple of little tiny prongs of skin around the edge that weren't red or irritated, so i'm assuming it's new skin trying to form. i figure it will take a while to heal up, since the hole...
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    Anyone with Normal Biopsies?

    i've read quite a few things that say it really depends what lab your biopsies go to and what technician reads them. all my biopsies came back negative for crohns. my last one was nonspecific chronic inflammation. of course that was right where my FISTULA starts.
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    Undiagnosed Club Support Group

    sunshine - good luck with your tests. and then hopefully you can do your treatments where you live instead of in jacksonville. anything they put you on you should be able to just have called in.
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