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Crohn's Disease Forum

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  1. Cross-stitch gal

    Price Increase for Pentasa

    I'm sorry to hear that. :( I happened to find a generic of Pentasa that is out and have been using it. Thankfully, it's quite a bit less expensive than I paid for the Pentasa and I'm also taking less pills a day. https://www.theharvarddruggroup.com/shop/item/get-details/pkid/816567 However...
  2. Cross-stitch gal

    Having a difficult time

    Other than being extremely exhausted all the time (which is normal for work especially this time of year), I suppose I'm not doing too bad I guess. However, I finally had enough of all the nonsense of all the women in my department, the same section (that's dreaded by everyone) 3 out of my 5...
  3. Cross-stitch gal

    Having a difficult time

    Got a Dear John email telling me that I didn't get the job. Pretty sure that part of the reason why is that what they were hiring for was seasonal, I would have been let go in January and not had a chance to be rehired. Which, would have been a mistake since I would have parted from my current...
  4. Cross-stitch gal

    Finally diagnosed with arthritis

    Oh my goodness!!! Haven't seen you in awhile so was hoping that things were finally working for you and that's why you haven't said anything. :ybatty: Looks like my hopes and wishes were wrong. Sending you lots and lots of hugs. :hug:
  5. Cross-stitch gal

    Stopping steroids

    I think I'd be continuing to talk with the advice nurse if you keep getting nausea and vomiting. Sounds like there is something still wrong that hasn't been fixed. I don't know where you are or which insurance you have. But, worse comes to worse if your doctor isn't listening you might also...
  6. Cross-stitch gal

    Sulfasalazine

    Sulfasalazine was my first medication I took when I first got diagnosed. I remember having the same symptoms when I began taking it. But, I'd never taken medication like this before either and it's possible that the reason for this was that I was SO SICK that my body was reacting to anything...
  7. Cross-stitch gal

    Tooth Sensitivity

    I've been dealing with a bit of flare and have noticed that when I bite down on either side of my mouth while eating I'm in pain. Normally I don't have this sensation. But, was wondering if any of you deal with this too? Was just reading and sounds like this might just be a part of my flare...
  8. Cross-stitch gal

    Ulcerative Proctitis Support Group

    Welcome howbern! I'm glad to hear that you've finally found something that works for you!!! But, I'm afraid that we're not allowed to share medications on here. If you're worried about unused prescriptions, I think I'd talk with my pharmacy or doctor's office if that were me...
  9. Cross-stitch gal

    Having a difficult time

    So, a few months ago I was given the chance to become a person in charge or supervisor at work two nights a week. I did better than anyone expected and am still doing this a couple nights a week to this day. Even though it's sometimes quite a bit more stressful, I've been given benefits from...
  10. Cross-stitch gal

    Do you live a "normal" life?

    If it helps any... I'm 40, have been married for over 18 years and hold a sometimes 40hr week job. As you can see, I was diagnosed in '96 at 18. It hasn't always been easy, but all I've been able to do is the best I can. Just got to know my limit sometimes as to what I can handle. But...
  11. Cross-stitch gal

    Any advice?

    I'm not saying he has it, but it kind of sounds like Ulcerative Proctitis. It's a directed diagnosis specifically in the anal area, and is a version of Ulcerative Colitis. I was diagnosed with this and had/have the same symptoms. I totally agree that a GI should informed. Good luck. :hug:
  12. Cross-stitch gal

    Biopsy and colitis vs ulcerative colitis

    No problem! For me, usually when they take a biopsy it's during a colonoscopy and it's to check for cancer. I didn't realize they could do that to determine a diagnosis. My inflammation when active is rectal, which sometimes can be more serious because it could the vaginal area as well...
  13. Cross-stitch gal

    Biopsy and colitis vs ulcerative colitis

    According to WebMD there are two. Sadly, I didn't know this as long as I've had IBD. But, here's the info I found. I hope this helps. There are two: Crohn's disease and ulcerative colitis. They have a lot in common, including long-term inflammation in your digestive system. ... By the way...
  14. Cross-stitch gal

    I hate CD!!!

    I'm not sure if it helps you at all. But, I turn 40 next month. I'm about 5ft tall and hover just below 90 lbs even now. Neither of my folks are terribly big either, so I may not have gotten too much bigger. But, I believe it might be possible that I could have gained a little more before...
  15. Cross-stitch gal

    I hate CD!!!

    How old is your daughter coolbeans? As tough as it is for you parents, I'm thankful that you all can get this taken care of for your children. I wish in some ways that my parents could have known about my IBD before I found out at 18. Sending you all my hugs and support!!! :ghug:
  16. Cross-stitch gal

    I hate CD!!!

    I hope all turns out for you no matter what! Even though I'm almost 40, there was once when I was cleaned out enough with only one bottle of the prep. I'd check with the doctor's office too. Depending on her weight and her bowl movements at the time, it might be ok. Please keep us updated...
  17. Cross-stitch gal

    Do some people never get a diagnosis

    I'm afraid I'm not sure. One thing I do know is that for some, they get a diagnosis right away and for others it'll take months or years. For me, I'm pretty sure that I've always had it since I was born. However, they started testing me the summer I turned 16 and continued testing me into...
  18. Cross-stitch gal

    Glasses

    Well...my glasses arrived yesterday in the mail. They fit perfect and were the right size and everything! But... They'd been made into distance permanent sunglasses!!! :sign0085: So, I called zenni and they gave me all the info I needed to send them back for a refund. Only catch is that...
  19. Cross-stitch gal

    Air Traffic Control

    Mental illness is a hard one. But, the biggest thing is to admit that you have one and to get help for it. And, this may not be for you however the choice is yours. We have a girl at my work that we believe may have a mental illness, but isn't getting any help for it. She's already been...
  20. Cross-stitch gal

    Sticky Crohn's Forum Candle Room

    I'm sorry to hear that and my heart goes out to you. Thank you for joining us. We're here for you too. :hug:
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