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May it continue!

I'm really happy that she found something that could help her for awhile. I'll pray that the funding goes through this time. Weird that she crashed after. I wonder if there was any connection. Praying for long term solutions and hope for her.

I'm glad Grace had a good birthday. I wish I could see a picture of her. I love the word picture of squishing Tinkerbelle with you butt. (I do believe in fairies, I do believe in fairies!) Jae is hypemobile and probably has EDS also. I'm glad things are starting to come together in answers...

There are some lemonade mixes that come in packets like Crystal Light but all natural that my non IBD daughter uses to drink her Miralax. Never have any trouble. I change up the flavor every now and then.

That was on Thursday. It was disappointing, because we don't think it got through her ileum before we ran out of time.

How about an MMR titer to prove immunity?

I feel your frustration. I hope in spite of all these obstacles, things can move forward.

Is the constipation being addressed with Miralax or other stool softeners? Maybe he doesn't want to eat because he is all backed up. My nonibd daughter has this problem and it is difficult to manage, but we found out she was allergic to corn and that has helped.

She cannot attend school any more. She missed too much and it was too stressful to always be behind. Now she hates school. She homeschools now, and will probably continue to until she graduates next year, or whenever she is able to finish. She meets with her friends occasionally. She has a...

Hi CrystalClear. Thanks for your empathy for Jae. It sounds like you must understand what she is going through. Have you tried medical marijuana yourself? I haven't ruled it out, but I'm actually hoping for more research to be done before I put my child in that boat. It has helped some, but...

I blogged about yesterday. If you want the full story, read here: http://apathnotchosen.blogspot.com/2017/01/scopes-and-pill-cam.html

Yes, they did.

Yes, but they couldn't get into the terminal ileum and the capsule didn't make it there either by the time they had to take her equipment, even though we left it on an extra hour. Only inflammation was in her stomach.

Sorry to say but that has been my daughter's story for about 2.5-3 years. She is not on Remicade. Everything makes her unable to eat and have pain. Haven't found the answer yet.

Great video!

Yes 😑

Scopes and pill cam today. She's in right now. She should be done soon.

Oh no, Kim. Your daughter is suffering such a rough patch right now. The storm is worst before the end, right?

Hoping with you.

Hi Cheryl, I'm so happy to hear how wonderfully Gus is doing. Jaedyn is 4 years post diagnosis this month, but has never done great. Still stuck on the first immunologic they prescribed during her first year. We're having a rough time, but will have scopes and a pill cam this week and we hope...