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I was thinking about gastroparesis for your older daughter too. My daughter has similar pain after eating or drinking anything, but no nausea or omiting. Her scopes barely showed anything at diagnosis, but her pill cam showed ulcerations throughout. I think the elevated crp is significant...

Cassiep, I think you referred to cbd...

Crohns is more agressive and difficult to treat in younger children, I think.

So I finally got word back from Jae's second opinion GI. They didn't get her records from Alaska, but would like to move forward with scopes, pill cam and the referral finally got where it needed to go and she'll be seeing a child psychologist. Those things will happen on Thursday. Next week...

I know what you mean. Hopefully someone can find real lasting solutions.

I hear what you are saying. I'm glad that she feels strong.

Her good days consist of going out and shopping with us a few hours, but then crashing the rest of the day. Her bad days are mostly spent in bed trying to treat her pain. On a good day she musters the courage to eat two small meals. On her bad days she lives on Gatorade. She's having 1-3...

You can post hear, some of our kids are adults with crohn's now. Start a new thread.

Aw poor girl. I hope she sheds the virus quickly. This whole thing is so wrong on so many levels.

Yeah, I saw that too.

Yes and no. The new doc feels Jae is too complicated for her and wants to talk to the head doctor about her and give her case to the head doctor. However the head doctor, I foun out yesterday has been out of the office. I think she is returning this week. Our PCP said he got a note from the...

I'd love to see something like this externally approved here that would work both for Jae's epilepsy and GI problems. They've discussed a vagal nerve stimulator for her epilepsy, but I don't want to lose her ability to do MRI's... An external stimulator would be great if it could be removed for...

Yeah, it was a waste of time and money. Three hours to tell us that they couldn't do anything and wouldn't even call the ultrasound in to check her ovary. They gave her some Tylenol with codeine and finally let us go home about 10:40 pm... She's pretty discouraged today. She's spending most...

I'm sorry to hear it. I'm glad she still had a great day.

Merry Christmas to you all.

We didn't make it a week on the seizure meds. Her rectal symptoms have calmed down. She had to stop the enemas while she had the stomach flu, but a week of them may have helped the rectal symptoms.

We're back in the ER. Jae's GI doc told us to reduce her 6MP due to low WBC and high 6TGN? She is having right lower abdominal/pelvis pain that has progressively gotten worse and not responding to Tylenol, tizanidine, heating pad, etc.

I'm so sorry you and your son have boarded this nightmare train. I wish I could tell you how to safely get off.

I'd give it a bit of time to get through the finals. I used to pass out in my college finals. It is so easy to overpressure yourself. Make sure he keeps himself hydrated through this and see how he does over the Christmas break. Don't worry about whether he's flaring until it is obvious that...

Jae got moved up to 12-20 for her new GI appointment in Iowa City! Woo hoo!